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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. clouty

    Why WPI and VIPDx positives need to think carefully

    So it's really serious, and we shouldn't give our blood to studies if we are xmrv positive?
  2. clouty

    Comment by 'clouty' in 'The Good Days and the Bad Days'

    The thing is, on a good day you have to guard that flame of heath returning. It is so easy to blow it (out) by trying to do all the things you can't possibly do when you are worse. I sold my car a couple of years ago, because i no longer could trust my ability to drive. I get vertigo sooo bad...
    • clouty
    • Blog entry comment