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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Kontra

    Help with interpretation

    Hi there, I don't suppose anyone might be able to give me some starting points for my 23andme results? Predominant symptoms are chemical sensitivity, peripheral neuropathy, gut issues, fatigue and brain fog I have started taking B12 a little blindly, without much knowledge of methylation...
  2. Kontra

    Unable to tolerate heaters (MCS)

    Hi Kanga. I do have nerve issues (shooting pains for a period of time that transitioned to frequent numbness and tingling) although my specialist would rather give me anti depressants than test for it. Fairly certain I have peripheral neuropathy that may or may not have a chemical cause. My...
  3. Kontra

    Unable to tolerate heaters (MCS)

    I'm not sure what thermostatic instability is. If it's a general intolerance to either hot or cold then no, I don't believe I have this problem. Oxygen, yes, in the presence of heaters. Thanks. I've not tried those quartz style heaters but may be worth a go. I do have some houseplants based on...
  4. Kontra

    Unable to tolerate heaters (MCS)

    Hi there, I might be unique in this affliction and have possibly tried all the options people would recommend but here goes.... Essentially, I'm unable to tolerate pretty much any form of artificial heat. Within minutes of either being near or in a room with a heater I get short of breath (air...
  5. Kontra

    Chronic electrolyte imbalance and worse during detox. Potassium?

    Have just had the results from an electrolyte and liver test back and there is some correlation with how I feel but it's not conclusive. I would appreciate any input if anyone has any theories Sodium - 146mmol/L (133-146) Potassium - 4.6mmol/L (3.5-5.3) And then the only other relevant test...
  6. Kontra

    Chronic electrolyte imbalance and worse during detox. Potassium?

    Intersting responses. Thankyou. I have had a full endocrine workup in the past which yielded nothing. I dont think i was feeling like i do now though when i was tested. I dont think i would have the sympathy of my GP as he thinks im a basket case and ive given up hoping they will believe im...
  7. Kontra

    Chronic electrolyte imbalance and worse during detox. Potassium?

    Hi all, Looking for some advice on some symptoms which appear to have worsened when I try any form of detoxification. I have the full gamut of health issues - gut issues (Constiptation), hypoglycemia, multiple chemical sensitivity, fatigue, brain fog etc. Probably 50 symptoms or so. I've long...
  8. Kontra

    Started Methylation with B12 only – Neuropathy is much worse

    Hi all, I’ve been dealing with a number of issues for a number of years, pretty much bread and butter symptoms for this forum – hypolglycemia, chronic fatigue, dizziness, multiple chemical sensitivity, IBS and about 40 others. The most significant however which is most severe is neuropathy...
  9. Kontra

    Is methylation the problem with Multiple Chemical Sensitivity?

    Ah, my bad! Yes it should be.... - 1.25mg of B6 - 25mcg folate - 12.5mcg of B12 (Methlcobalamin)
  10. Kontra

    Is methylation the problem with Multiple Chemical Sensitivity?

    Hi All, I'm after some advice for getting started. I have numerous symptoms, notably multiple chemical sensitivity, peripheral neuropathy, slow digestion, constipation, acid reflux, insomnia, braing fog, chronic shortness of breath, left and right ache under the rib cage, lack of appetite...
  11. Kontra

    Digestive doctor/nutritionist recommendations in the UK?

    Hi there, I'm looking for a doctor/experienced nutritionist in the UK that may be able to help with digestive/liver and detoxification issues for quite a tough case. As I have gastroparesis and multiple chemical sensitivity and my case goes well beyond just needing a diet change and some...
  12. Kontra

    Broad spectrum options for an inflammed gut?

    Hi All, I'm in pretty bad shape with MCS, liver/methylation issues and a raw, toxic inflammed gut. I don't really have a strategy for knowing how to get better but know I somehow need to support my gut. It's quite possible it is the cause of all my issues. I had a metametrix test about a...
  13. Kontra

    Fast phase 1, sluggish phase 2

    Hi everyone, Has anyone had any success with inhibiting phase 1 and boosting phase 2 liver detox? I'm a pathological detoxifier with chemical sensitivity and significant supplement intolerance, especially anything designed to 'boost' the body. I have an issue whereby nutrients become toxic...
  14. Kontra

    Help for a difficult case

    Thanks Caledonia, No is was just me, although I had many of the symptoms I listed above already prior to that exposure, that's just when my MCS developed and other symptoms seemed to decline. No-one else in my party was affected. That was likely the 'tipping point' that sensitized me to my...
  15. Kontra

    Help for a difficult case

    I'm not sure if it was carbon dioxide (?). It was a gas leak in the street which drifted into the restaurant I was in. So the equivalent of leaving the gas on in your house and inhaling the fumes for half an hour. I did briefly try a canned oxygen product during my bouts of shortness of breath...
  16. Kontra

    Help for a difficult case

    Was your 'metabolic testing' using a hair analysis? Or something different? Nutritional Balancing appeals to me due to the all encompassing nature of my particular symptoms and the ideology that you build the body up, rather than attempt aggressive detox procedures. Not sure about clay. Never...
  17. Kontra

    Help for a difficult case

    Hi guys, I’ve been reading this forum with interest and wondered (hoped) some people might be able to offer some thoughts as things are extremely rough for me at the moment. I’m quite a severe case with a triad of issues stemming from I believe the adrenals, liver and gut. Standard bloodwork...