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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Junto

    Low Oxalate Diet ... experience?

    Just go low on oxalates for a week or so and see how you feel.
  2. Junto

    Anyone using Prescript-Assist probiotic?

    A practitioner that I have a lot of respect for says it's the most effective and safe form he's ever used. http://chriskresser.com/5-uncommon-uses-for-probiotics Junto
  3. Junto

    CFS Triggered by almost all foods / liquids

    Tyson, I'm not sure the type of paleo diet your following, there are many versions. Eating fermentable fibers such as sweet potato and white potato along with a lot of veggies and copious amounts of healthy fats will keep your digestive system humming along. Personally, I subscribe to Paul...
  4. Junto

    CFS Triggered by almost all foods / liquids

    Just curious Eric, do you have any sinus/nasal symptoms after eating in addition to the other symptoms you have described?
  5. Junto

    CFS Triggered by almost all foods / liquids

    Firstly, I think Paleo is a great place to start in changing one's lifestyle to promote healing. However, your may need to adopt a therapeudic form of paleo in your case. You likely have dysbiosis or SIBO after taking the antibiotics, this is not uncommon. It sounds like a GAPs protocol would...
  6. Junto

    Bug!!

    If you have IBS, it's likely caused by SIBO. You can get tested for this with a hydrogen breath test. Many studies indicate SIBO as likely being causitive in Fibromyalgia. It's probably worth focusing on this.
  7. Junto

    My personal research into IBS and its relation to CFS

    Sounds like your on the right track, I'd find out if it's SIBO. IBS is often caused by SIBO as well. Hydrogen breath test would be your first step to determine if you have SIBO. After that, perhaps a stool analysis is in order. It sounds like you definetely have pathogens in your gut, you...
  8. Junto

    Looking for Dr. recomendations, any location will do.

    Thanks everyone, I'm going to start looking into these docs.
  9. Junto

    Looking for Dr. recomendations, any location will do.

    Hi Sushi, well, I didn't want location to be a constraining factor. I'd rather find someone highly regarded and recommended by the community irregardless of location. I live in Orange County, CA.
  10. Junto

    Looking for Dr. recomendations, any location will do.

    I'm looking for a specialist for Fibromyalgia, any location will do(skype). I have some GI issues that I haven't been able to clear up on my own and I'm done screwing around with it on my own. Thanks.
  11. Junto

    Does anyone know how next year's new health care will affect us, and what we can do?

    Since CDs/me/fibromyalgia is not "life threatening", I believe our care will be de-prioritized. We have to be informed and take our health into our own hands. If you frequent this site, your likely already doing this. With so many motivated and smart people here, I think well eventually come...
  12. Junto

    Stool test confirmed candida,now what?

    Has your dr recommended antifungals? I think that would be your best bet. I don't think diet is very effective for candida aside from immune enhancing benefits of a good diet. Low carb is not going to kill fungi such as candida, they have mitochondria and therefore the ability to metabolize...
  13. Junto

    Probiotics Can Cause Depression (?) Possible Pathogen, Candida, Th1/Th2 Immune Response

    Have you had lab tests yet? Some pathogen can only be eradicated with specific drugs. Also, you may have an underlining condition that needs to be resolved to prevent future infections, low stomach acid for example.
  14. Junto

    Recommendation about magnesium for pain relief or nother advice?

    Better absorption than non-chelated. However, epsom salt is a great option, very relaxing too.
  15. Junto

    Probiotics Can Cause Depression (?) Possible Pathogen, Candida, Th1/Th2 Immune Response

    Careful with that stuff, it kills good bacteria as well as bad. Do some research on proper dosage, it's not as benign as once thought to be. http://benotaslave.wordpress.com/2009/04/27/kill-bacteria-and-viruses-slaughter-them/
  16. Junto

    D-mannose cure candida?

    I'm not a big fan of the anti-candida diet for the reason that fungi have mitochrondria and the ability to metabolize ketones. Anti-candida diets call for the elimination of starch, which will make the body ketone rich, the perfect environment for fungi to thrive. If your daughter had success...
  17. Junto

    Recommendation about magnesium for pain relief or nother advice?

    Chelated is best, magnesium glycinate or malate at 400-600mg. Check out purebulk.com, they are very affordable.
  18. Junto

    Fecal Transplants

  19. Junto

    Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission

    I'm almost certain you'd feel better in the long run going off of gluten/wheat. Nobody is healthier for eating wheat, it is very low in nutrition and is chock full of anti-nutrients and proteins that aggrevate the immune system.
  20. Junto

    Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission

    Mary, leaky gut can be caused by a number of things. SIBO, FODMAP malabsorption and low stomach acid can all cause leaky gut. Your diet can be dialed in and your gut will remain leaky if the underlining cause is not fixed.
  21. Junto

    Memories don't feel real - is it just me?

    I believe that all cfs/fibro are in a chronically altered mental state and it's expression is different for each individual. In the past when my symptoms were far worse, I often felt as though I was in between the dream world and reality much of the time. Perhaps it was just severe brain fog...
  22. Junto

    Magnesium/Calcium Recommendations?

    There are many papers and studies that show supplementation of calcium via pills is dangerous. I would get it through food, best one for this is bone broth. I think any chelated magnesium is good, 200-400mg per day.
  23. Junto

    Acne

    Here is a very well researched and referenced paper on the subject, hope it helps. I've also read there is a gut health component to this. http://perfecthealthdiet.com/2013/02/what-causes-acne-an-overview/
  24. Junto

    Undigested food in stools...

    Please get tested for hypochlorhydia (low stomach acid). In the mean time, try now foods super enzymes. Start with one capsule per meal but only when eating protein. Increase by one capsule per meal untill you feel a limitless warmth in your stomach. It's very important to only take these...
  25. Junto

    Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission

    That's great news! Must be exciting to experience significant results. If you've seen any of my last posts, you'll find that I happen to agree with you that there is definetely a connection between gut health and CFS/Fibro. Many studies point to this. Your brain fog could have been...
  26. Junto

    Fixing Leaky Gut Helps ME/CFS, and Sometimes Achieves Full Remission

    All good points. I would say the majority of the battle for most of us is to eliminate the offending foods. Once we stop worsening existing wounds in our digestive tract, the body should be able to heal itself. Doesn't it work that way for the majority of our ailments(cut/bruise, fever etc.)...
  27. Junto

    How many of us have had SIBO/Leaky Gut Tests? Results?

    I think it's safe to say the vast majority of us have gi symptoms. I'm interested to know how many of us have been tested and how many have had the results indicate that they have the condition. This is the latest potential cause wormhole I've going down and I'm begining to think it is...
  28. Junto

    anyone have burning, aching legs?

    I largely agree with this statement. Although I do have a lot of body and muscle aching and weakness, the more debilitating part of my condition is mental fatigue or brain fog. I may be in a better position to push myself physically. Those who experience more intense PEM should definetely...
  29. Junto

    Biotin Deficiency and Egg whites

    Ha ha, fair enough.
  30. Junto

    Biotin Deficiency and Egg whites

    I could really talk your ear off about the benefits of egg yolks, but I wont. Take it easy on the egg whites, especially since your eating them raw. They contain allergens which people like us are typically more sensitive to.