• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. triciaruth

    Cerebellar Tonsil Herniation/Chiari Malformations/Tonsillar Ectopia

    My sister was diagnosed with Hindbrain Hernia and Arnold Chiari malformation in her 30s during 2004/5 and has visual impairment and balance issues along with other symptoms (she thought headaches were 'normal' having had them all her life). She has been offered the decompression surgery on a...
  2. triciaruth

    Important Question

    Not sure that someone can say that an individual has 'atypical' CFS/ME as my understanding is that EVERYONE who has CFS/ME is 'atypical' as Chronic Fatigue Syndrome is an umbrella term for some hundreds of conditions that can all, individually or in any combination indicate a sufferer has CFS...