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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. C

    Dr. success using higher doses of GCMAF

    Not sure what to say, I was really sick for 8 years and saw three specialists in this illness and spent over 75k trying to get well and Dr. Teitelbaum was the only doctor to cure me. I have been perfectly well and medicine free for 4 years. However, I will note that at the end of April, I got...
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    Dr. success using higher doses of GCMAF

    I wanted to write and let everyone know that I went to Dr. Jacob Teitelbaum in 2017 and he got me perfectly well in 6 months. I had an antibiotic resistant bacterial infection you pick up from hospitals among other things causing my severe sickness. He put me on 36 things and within 3 months I...
  3. C

    Dr. success using higher doses of GCMAF

    it has almost a month and I am doing 30% better now on the ADHD medicine. I take 10 mg of extended release adderall daily. My moons on my nails have come back to 70% of normal. I still take my usual 200 mg of gcmaf a week and all of my medicines except much less of the heppapressin. I used...
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    Dr. success using higher doses of GCMAF

    This is big news. My husband was diagnosed with ADHD and he started taking ADHD medicine. Within 2 months, he is now completely well from chronic fatigue. He was taking GCMAF each week or he went completely downhill within a week or so. He also could only work 2 days a week. However, with...
  5. C

    Does Valtrex block mitochondrial reproduction?

    I heard that Dr. Cheney is no longer using GCMAF? Is that true? If it is true, do you know what he is currently using to treat Chronic Fatigue? Thanks for the update. I had followed years ago but have not kept up to date currently.
  6. C

    Dr. success using higher doses of GCMAF

    The yogurt from Dr. Enlander is $150. It makes enough for approximately a month.
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    GCMAF factory closed down in the UK

    I could not disagree with you more. Many people have been able to function with Chronic Fatigue due to this drug. These guys have done the chronic fatigue community a huge favor over the years. I am very sad to hear this news as well as the news that Professor Ruggiero has been banned from...
  8. C

    Dr. success using higher doses of GCMAF

    You can make it with goat milk and goat kefir and goat yogurt if that helps...
  9. C

    Dr. success using higher doses of GCMAF

    It is easy to buy MAF878 from Dr. Enlander. He sells it on EBAY.
  10. C

    Dr. success using higher doses of GCMAF

    I got the new form of GCMAF from GCMAF.eu over the holidays and found that it works exceptionally well. Previously, I had been taking 1.5 MG GCMAF from Dr De Meirleir's GCMAF. First I took .5 of the new from GCMAF.eu and 1.0 of the old. Then the next week 1.0 from the new and .5 from the old...
  11. C

    Dr. success using higher doses of GCMAF

    Interesting. I will talk to my doctor about that idea. Thanks!
  12. C

    Dr. success using higher doses of GCMAF

    My mom is on PD1 and Yervoy (clinical trial) and has seen a 44% reduction in 6 weeks in her tumor (stage 4). These are another form of immune enhancers other than GCMAF. My dad is on the yogurt while he does his chemo and his test results improved with the yogurt. The official ones come out...
  13. C

    Dr Enlander cost?

    I love Dr. Enlander. He has turned my health and the health of my husband around almost completely. I am hoping to be as close to 100% well in another 4 or 5 months. I would try him first as I can personally testify to his ability. I started out in a wheel chair in public and now can work 100...
  14. C

    Dr. success using higher doses of GCMAF

    Yes. Dr. Enlander has it and will ship and the website https://www.gcmaf.eu/ in England has it and will ship into U.S.
  15. C

    Dr. success using higher doses of GCMAF

    This week for the first time in 5 years, my moons started showing up on my middle finger and much more on my index finger. It is I believe the 4th week I have taken the 1.5 dose and I had the best week I have ever had last week. I had to work long hours but told my husband that I felt 100%...
  16. C

    anyone seen or seeing Dr. Enlander?

    I became his patient in early 2012. The first appointment, he ran tests on me and told me that I had CFS. I was already taking GCMAF .25 ML a week. He recommended higher doses of 100 ML per week so we gradually moved up over several months to that amount. I could quickly see a big...
  17. C

    Dr. success using higher doses of GCMAF

    The yogurt I take is from Dr. Enlander and is 150 a month. I think it is called MAF878. It comes as a starter kit that you add to milk, kefer and yogurt. It was made in his lab. I do not think you can grow it by yourself. However, the kefer and yogurt that is added can be grown and cultured...
  18. C

    Dr. success using higher doses of GCMAF

    This better form of GCMAF is what motivated me to do the higher doses. People are taking way higher doses of GcMAF for cancer. I did some research into it for my parents. My parents have cancer and one is on a clinical trial of immune drugs at extremely high doses with virtually no side...
  19. C

    Dr. success using higher doses of GCMAF

    I had a 105 hour week once in the midst of some other 90-100 hour weeks and it required me delay the shot and found that I went downhill amazingly fast. By Tuesday after missing it on Friday night, my memory was so bad that I had to go home on Tuesday and take the shot and take Wednesday off...
  20. C

    anyone seen or seeing Dr. Enlander?

    I found Dr. Enlander to be incredible at getting me well. My husband and I have been a patient now since 2011 and have almost fully recovered. Take extremely large doses of GCMAF on the weekend and .5 ML of Heppapressin a day and .25 ML of Magnesium and .25 ML of Taurine combined a day, 1 ML...
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    Dr. success using higher doses of GCMAF

    I have been doing extremely well. Again, working too much but doing much better with this illness than ever before. Actually, had three 100 hour or more weeks in a row and as high as 125 hours in one week with travel across the country and back and back again in one week along with crazy hours...
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    Dr. success using higher doses of GCMAF

    I am in the United States but I understand that Dr. Enlander treats patients at a distance.
  23. C

    Dr. success using higher doses of GCMAF

    I totally agree. Obviously, I am a workaholic. I think if I could get a two week break and take the yogurt everyday like my husband did, it would go a long way to getting me well as would cutting back my hours. He did it for the first two weeks and missed a lot of work but now is doing much...
  24. C

    better to use KDM's or David Noakes Injectable GcMaf

    I had less inflammation (boils) from KDM's GCMAF then from David's GCMAF . KDM's is cheaper also. However, I appreciate David Noakes being out there available as a source for GCMAF as it is a lifesaver for many people who can't get GCMAF.
  25. C

    Dr. success using higher doses of GCMAF

    I am not 100% yet but I did work over a 100 hour week not including travel time of another 8 hours this past week and didn't feel sick. For the past 3 weeks, the average has been over 95 hours a week plus 8 of travel and I didn't feel sick. However, strenuous exercise is still not possible for...
  26. C

    Dr. success using higher doses of GCMAF

    I get it from Dr. Enlander who ships it to me each month from NY. He ships both MAF878, GCMAF and heppapressin shots in fed ex to me.
  27. C

    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    I just take a cetirizine tablet (the generic of Zyrtec) before the shot and daily each morning.
  28. C

    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    Something else that is interesting to me is that a couple months ago my husband thought he was doing well enough that he would switch to IM instead of IV. After a month, he went downhill and had to switch back. My understanding is that 60ng of IM is equal to 40ng of IV.
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    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    Until I got better I never had fatigue for less than Friday night to Monday morning and then after a year, Friday night to Sunday evening and then Friday night to Sunday morning. Now it is not very noticeable at all. I was surprised that you only have a 1/2 day of fatigue. It seems shorter...
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    GcMAF for XMRV--Gc protein-derived macrophage activating factor--anyone taking it?

    For whatever it is worth, I have tried three different kinds of GCMAF and found that Dr. Demelier's form of GCMAF gave me the least amount of inflammation by a long shot. Also, I am sure you are doing this already but Dr. Cheney recommends that you take liquid benedryl an hour before you take...