• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. C

    hyperacusis specialist

    along with severe ME is the astounding symptom of hyperacusis, an intolerence to any noise. i'm wondering if anyone has had a loved one with this symptom, and if you did, how did you take care of it, please. Very thankful for any info, any at all
  2. C

    URGENT: Need An ME Specialist ASAP

    skype sounds like a good idea thanks so much!!
  3. C

    URGENT: Need An ME Specialist ASAP

    lancaster, pa sorry
  4. C

    URGENT: Need An ME Specialist ASAP

    I am typing this long thread(sorry so long to read) for my son who is in search of an ME Specialist, as am I. He is under a family doctors care now who visits every week. He is also with loving family in his own home but feels he is going downhill fast and wanted to reach out to all of you to...
  5. C

    losing my minds ability to think

    My deepest thanks goes to all of you who have overwhelmed me with kindness and support. I have read all your posts 3 times and wrote down a list for us to follow. Its tricky tho because i can not communicate with Billy, so he just has to trust me. His story: mono , age 20, in college, soccer...
  6. C

    losing my minds ability to think

    thank you, im candie, the mother, my son, Billy is sick, hes only 26
  7. C

    losing my minds ability to think

    folks, my mother is typing this for me. I need your help right now.I am literally losing my mind, thought process. memory, concentration and the ability to think straight and clear. I need a way to block my inner ear canal now. I wear rifle range headphones but they do not block the inner ear...