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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    List Best Top 5 ME/CFS Doctors

    Dr Susan Levine in NYC is very experienced, knowledgeable, and compassionate
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    Does anyone have any experiences with Dr. Peterson of Incline Village?

    Thanks, that was very helpful.
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    Would you try Rituximab?

    i really should not have quoted my doctor out of context without her permission. i think what she was referring to was other previous patients who have tried rituxim. she was not referring to any conclusive, definitive, final "results" of the current study. she has a large amount of longtime...
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    Fasting triggers stem cell regeneration of damaged, old immune system

    Hi everyone, I just wanted to post a link to the broiled-oranges fast, in case anyone is interested: http://drsingha.com/blog/drsinghas-broiled-orange-fast-interview/ I will post again if I do go through with it, and let everyone know how it went... Thanks!
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    Fasting triggers stem cell regeneration of damaged, old immune system

    Hi, I just wanted to clarify that I did not get this fasting protocol from an internet post, but from a friend of a friend. He says he was a fully bedridden CFS patient, which I have no way to positively confirm, I just have to take his word for it. Believe me, I am as skeptical as anyone can...
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    Fasting triggers stem cell regeneration of damaged, old immune system

    Hi SOC, I don't know if you were responding to my post in particular, or just to the fasting thread in general, but I wanted to stress that I wouldn't be considering the fast if another CFS patient hadn't said it really helped him. He recommended it to me in 2007, so I haven't exactly been...
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    Fasting triggers stem cell regeneration of damaged, old immune system

    Hi everyone, I am a 15-year CFS patient, who's tried just about everything, but I've always avoided fasts, as I have zero willpower, and every restricted diet I've ever tried hasn't helped in the slightest. But a friend of a friend told me he was able to get better after seeing a holistic doctor...
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    Would you try Rituximab?

    hi, i have no idea about cost or requirements. if u are interested i wd make an appt to see dr susan levine on 72nd st in nyc. her # is 212-472-4816. good luck, nicholas
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    Would you try Rituximab?

    they definitely are nowhere close to having full results (as far as i know they have just recently begun). this is just anecdotal from a discussion with my doctor, who is also fielding patients for the Klimas Rituxim study. I think they have just begun, but when I asked her if it was worth it...
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    Would you try Rituximab?

    there is a rituxim study just underway overseen by dr nancy klimas in miami. i was invited to take part in the study, but i am too ill to move and it requires 6 mos in either miami or nyc. also, i did not want to relocate and then end up getting the placebo! (i am no longer in nyc) from what i...
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    Figure out what causes Relapses (Fall)

    thanks very much for your response. i know this disease is different in all of us. i have also had (brief) success spending time in miami. because nyc is my lifelong hometown i have been hesitant to leave, but it seems like i may have no choice. i doubt living in an easier climate will be a...
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    Figure out what causes Relapses (Fall)

    i have had CFS for 12 years. my relapses seem to occur during the change of seasons, either autumn or spring. i also usually go into remission in the summer. i'm considering leaving nyc for california, to see if the gentler climate might help. i'm curious if anyone w CFS has improved after...