• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

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    Who belongs on a list of the top ME/CFS researchers?

    Sorry,I didn't see someone had already said Lerner!
  2. T

    Who belongs on a list of the top ME/CFS researchers?

    Dr,Martin Lerner in Michigan.
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    Trying valcyte again, so far so good

    Yes,that would be nice if they could treat the side effects,then I might have been able to stay with the Valcyte.Maybe some day.
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    Trying valcyte again, so far so good

    I had to stop valcyte also due to unpleasant side effects.I wish I could of hung in there longer than I did,(8 months)but it was unbearable.I had severe back pain constantly,jaw pain so bad I could barely open my mouth to eat,and other symptoms.Since I've been off valcyte I felt all those side...