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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Eileen Holderman’s latest Twitter storm 23 Sep 2018

    I do hope they all answer!
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    Eileen Holderman’s latest Twitter storm 23 Sep 2018

    Thanks, Nielk. It’s also linked in tweet no 9 above. :)
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    Eileen Holderman’s latest Twitter storm 23 Sep 2018

    1. Proper definition, name + code 4 #MyalgicEncephalomyetitis r vital 2 a million American men, women + children & 17 million people worldwide suffering from the disease. 2. @CDCgov have created faulty definitions+names 4 #ME & The National Center for Health Statistics (NCHS/division of CDC)...
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    NYT: "Getting It Wrong on Chronic Fatigue Syndrome" by REHMEYER and TULLER

    "WOULD YOU LIKE A UK PUBLIC INQUIRY INTO THE ABUSE OF ME SUFFERERS OVER DECADES OF NEGLECT?" http://www.drmyhill.co.uk/wiki/Medical_Abuse_In_ME_Sufferers_(MAIMES)
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    ICD-11 status reports: G93.3 legacy terms: PVFS, BME, CFS

    Thanks for all your hard work. This is very worrying...