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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    Comment by 'lcollins64' in 'Such Morbid Thoughts'

    I am so sorry that you are so sick. I have also been sick for 22+ years. Have you been this ill for the whole length of your illness? Gentle hugs to you. My thoughts are with you. I hope you get a break and can feel even a fraction of a bit better! I really hope you can feel a whole lot...
  2. L

    Comment by 'lcollins64' in 'Such Morbid Thoughts'

    I am so sorry that you are so sick. I have also been sick for 22+ years. Have you been this ill for the whole length of your illness? Gentle hugs to you. My thoughts are with you. I hope you get a break and can feel even a fraction of a bit better! I really hope you can feel a whole lot...
  3. L

    Dr. Byron Hyde Skype consult?

    ukxmrv: What type of testing does he do? What else is he looking for? Wondering...wanting to see if there is something else I need to rule out after 22 years or a secondary condition that has not been tested for. Thx.
  4. L

    Dr. Byron Hyde Skype consult?

    Oh wow! I didn't know that anyone could do a skype consult with Dr. Hyde. I saw him at a presentation 20+years ago about his book. I don't have much money to work with either. Keep us posted on what you decide to do!
  5. L

    The Anxiety thread

    I'm glad to see this thread. I have had this "DD" CFIDS for 21+ years. Seems like I should know all there is to know, huh? No, I don't. I too suffer from extreme anxiety. I take Klonopin at night and sometimes during the day. Don't like to; but sometimes there is no other choice. My...
  6. L

    can you recommend a doctor in the Alabama gulf coast area?

    Hi Farrellkitty, I just found your post~ there are so many different options on this site I get very lost! I am from Alabama also; small town of Camden. I have a friend with CFIDS that lives in Mobile. She sees various doctors in Mobile; of course, just gets treated for some of the symptoms...
  7. L

    Jaw Problems/TMJ Disfunction?

    Flamingo, I have TMJ and back in the 90's when I had insurance that would pay half, I went to a special orthodontist that put me first in what they call appliances that move your teeth, then braces and realigned my jaw. Also put me on the no sugar, no white products., etc, diet, no hard foods...
  8. L

    Cheney's Latest Newsletter

    Hey depic, I didn't mean to sound as if I didn't appreciate Dr. Cheney and his brilliance at all. And I'm sure we will get this information trickled down to us through others that are able to see him. It's just when you get an email about his newsletter and then hit "get more info" and it...
  9. L

    Cheney's Latest Newsletter

    serg1942, I'm with you. I cannot understand why there is a charge for this information. As a person on disability that gets an amount that barely and not usually covers basic expenses, how in the world can we afford to pay for information that should be readily available to us..the ones that...
  10. L

    A review of EVB and CFS by Dr. A Martin Lerner

    Well I know that my Epstein Barr virus is always positive, everytime I get it checked. Also the CMV and the HSV I&II, My problem is when I try any of these drugs; from Zovirax, Famvir, etc. I become so very ill that I just cannot take it. Are we supposed to take a smaller dose or what? 21+...
  11. L

    Klimas cfs clinic

    To Sensing Progress, Hi, I just read your post about your appt. with Dr. Klimas. I have had CFIDS for 21+ years now. I was aware of everything you were talking about, except for the Low Dose Naltrexone. Well, I do remember seeing this before, but I've never looked it up. I just got through...
  12. L

    Panic Attacks/Panic Disorder

    Hmm....I haven't associated panic with wheat and dairy. How were you able to "weed" this out as the culprit? Thank you for your reply.
  13. L

    Panic Attacks/Panic Disorder

    What is LP? I've thought about CBT; but it wouldn't be free for me. I would have to see if and how many sessions were covered by Medicare. Thank you for replying!
  14. L

    Panic Attacks/Panic Disorder

    I assume I'm posting in the right category. I would like to know who has panic disorder along with CFS/ME? AND what treatment has been SUCCESSFUL to deal with, overcome, the panic? I've had CFS for since Apr 89. Panic has been a part of it all along....worse at times....worse over the past...
  15. L

    HEADACHES - What's your treatment?

    Thank you Thank you to everyone who took the time to post a reply to me. I will go back and read them again..and again...and again, and write some notes!!! :) I haven't been on here lately as I continually forget my username and/or password. I know this isn't the thread to ask on...but...
  16. L

    Low Cortisol Hampers Treatment Effectiveness!

    Jody, I see your location is Ontario, Canada. Do you see Dr. Byron Hyde by chance?
  17. L

    Low Cortisol Hampers Treatment Effectiveness!

    Adaptogens Hey Jody, By Adaptogens do you mean products like Adrenal Cortex Fractions or what? Thanks! Lane
  18. L

    HEADACHES - What's your treatment?

    Thank you Jody!
  19. L

    HEADACHES - What's your treatment?

    Hey everyone, I was wondering about treatments options that you have tried for our kind of headaches? After surviving with CFIDS/ME/FMS for 20+year you'd think somehow I would have found some effective treatment; but no; usually headache will be bad for 3-4 days then go away. I have had them to...