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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    The Real ME: A Stock Photography Resource for the Media

    I've met a couple of people with "CFS": they look like they are wearing a mask to hide how they really are. Nobody wants to know that you're sick; and if they did, then they'd just take advantage of the situation. I have ME, and apparently I act antisocial & scowl. The best stock of how I feel...
  2. K

    "The Oxford Definition: It's Baaack”

    I did. I asked my medical practitioner for and got (positive) assessment for ME under the ICC.
  3. K

    ICD-11 Alpha Draft scheduled to launch in May

    I got lost in amongst there. What's the connection with SNOMED? as SNOMED has ME as depricated and CFS as mental or...
  4. K

    Researchers just need to start using a different name

    Yep, there's a problem deep deep down under that rock: health insurers; military insurers; butt coverers; you name it. What's new? Now a replacement for READ code F286 CFS ( disease of the nervous system) in SNOMED concept code 52702003 CFS mental disorder.
  5. K

    Researchers just need to start using a different name

    Go right the way back to Melvin Ramsay;s case definition: "[Pain:] In severe cases of ME, muscle spasms and twitchings are a prominent feature and give rise to swollen bands of tissue which are acutely tender." "A very thorough examination of the central nervous system should be made"...
  6. K

    Researchers just need to start using a different name

    Lying on the consulting room floor I handed my medical practitioner a note asking to be assessed for Myalgic Encephalomyelitis. Blank stare. I pointed out to him on the note that it was coded G93.3 in the official international classification of diseases. Blank stare. With slurred and...