• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    Genetic ADHD - Might you have it?

    Hi, not sure if this is of any use to you but my brother has ADHD (the worst case the specialist had ever seen when he was diagnosed back in the 90's) and I have ME. ADHD is indeed real. Anyone who says otherwise has never spent 10 minutes alone with someone who has it!
  2. L

    Distraught after seeing my GP :(

    Thankyou :) I'll post my results here, although I'm sure theres a more appropriate place to post them eventually. In fact, I recall reading a thread of people posting their mito function results, maybe I should dig that out later. Test Normal range Result Interpretation...
  3. L

    Distraught after seeing my GP :(

    PS UKxmrv, she did mention the GMC hearings actually which suprised me that she had looked into it so much. She seemed concerned by this - although I did of course say that it had all been overturned.
  4. L

    Distraught after seeing my GP :(

    Thankyou for your replies and kind words. I just needed to vent - I was so looking forwards to a treatment plan that was actually supported by my GP and had got my hopes up far too much. Thats my own stupid fault, although I'm sure you have all had similar moments in your own quests for answers...
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    Distraught after seeing my GP :(

    After joining this forum and reading more about ME I went ahead and got a mitochondria function profile done with Dr Myhill. I'd been to see my new GP before ordering the test to see if she would support me in it - she (refreshingly!!:eek: ) said that she was open minded about ME and would be...
  6. L

    Is a headache lasting 4 months solid "normal" for ME?

    Hi again and thankyou once again for your thoughts - just an update here. The headaches do seem to have subsided slightly - I still get at least one at some point every day but nowhere near the intensity of before and also not constant!!! This is a real improvement in quality of life for me...
  7. L

    Is a headache lasting 4 months solid "normal" for ME?

    Once again, thankyou to everyone who has taken the time to post. Sounds like some of you are or have been really suffering with the head pain too, but its nice to hear that some people have found things that help them cope. I now at least have lots of things to try if the following doesn't work...
  8. L

    Is a headache lasting 4 months solid "normal" for ME?

    heapsreal, thankyou, in that case I will try some nasal spray and sudafed. None in the house unfortunately but its another one for the shopping list...its going to be an interesting shopping basket! Valentijn, I actually have some omega 3 capsules (vegetarian ones) so have just taken some -...
  9. L

    Is a headache lasting 4 months solid "normal" for ME?

    Wow thanks for all the suggestions! At least I now know that its something that I should explore further, and several avenues to go down. Hope is a great thing. I think initially I will book an eye test and doctors appointment with a different GP and go from there, if nothing comes up as a...
  10. L

    Is a headache lasting 4 months solid "normal" for ME?

    Hi everyone. For just over four months now I have had a constant headache of varying severity from an annoying hum to a full blown migraine with the average day being a sore buzz with stabbing pains mixed in. It often feels like like lots of tiny little men trying to dig their way out of my...
  11. L

    Optimum Health Clinic - anyone used or have an opinion?

    I just wanted to say that as a result of this forum I have ordered the Mitochondrial Function Profile from Dy MyHill, and had the blood taken today (oh my word that was a lot of blood for someone who detests needles!). I had a period of feeling really really unwell so took a while to get it all...
  12. L

    Optimum Health Clinic - anyone used or have an opinion?

    So, having read all your posts for the thousandth time I visited my Mum today and showed her. We have a new dilemma, and thats figuring out if I have ME or CFS! In all honesty, because the doctors have always told me they are one and the same and that they prefer the term CFS, I hadn't given any...
  13. L

    Optimum Health Clinic - anyone used or have an opinion?

    Thanks so much for all the information, it is all incredibly helpful. I am sharing it with my family too. There is a lot here to digest, so please bare with me whilst I look up each thing mentioned! I will post again soon, no doubt with a bombardment of questions for you all :redface:
  14. L

    Optimum Health Clinic - anyone used or have an opinion?

    Thankyou Sian and hi! Sorry you posted whilst I was typing my reply to the others. Its very interesting to hear of your experiences, particularly about Niki Gratix. Thankyou for sharing, and also your recommendation for Dr Myhill. She sounds promising. Its difficult that theres no "one size...
  15. L

    Optimum Health Clinic - anyone used or have an opinion?

    Hi Jenny, Justy and SOC :thumbsup: Thanks for replying. I really do appreciate your input! I had my 15minute psych department chat and didn't feel especially satisfied by the answer the (very friendly and professional) lady gave RE the use of NLP and EFT practices. Interestingly, Jenny, she...
  16. L

    Optimum Health Clinic - anyone used or have an opinion?

    Hello everyone :) New member here, I've had ME/CFS for a long time now...first diagnosed 1999, relapsed 2007. Want to get better desperately etc etc, you know the rest!!! Two people my mother knows have had some success from the Optimum Health Clinic http://www.freedomfromme.co.uk/ . One...