• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. W

    B2 I love you!

    Does the B12 oil in Australia still in business? I could not order any today. Do they have a new email.
  2. W

    B2 I love you!

    Does Gregory Russell jones still have his B12 transdermal oils I Australia? I tried to order and could not. Please let me know. I have been on them for awhile.
  3. W

    BX protocol Lyme

    Smeden, I want to know more of the BX treatment. Email me please walkerlenaallyn49@gmail.com. I can not live like this anymore
  4. W

    Feeling helpless

    Anyone, is there hope for late stage Lyme and MTHFR a1298c two copies?Had first appt with a ilads dr in CA a Dr Thoring trained by Dr Harris. I am so sick. He says he knows methylation. I don't have any fight left been doing protocols for CFS for years just found out I have Lyme which I think...
  5. W

    Anyone Have Lyme with MTHFR also ?

    I have just been diagnosed with Lyme after 15 years of being told I have CFS. I also have MTHFR a1298c two copies and started the b oils several months ago, had one month started feeling better than it was gone. I also have high lead and high mold and E. coli in gut. Have a new natural path and...
  6. W

    Transdermal B12 oils

    I also have Lyme disease and MTHFR a1298c and high lead and high mold. Where do you start? I started the B oils and have a new naturopath trying to figure out what to do with me. Has anything worked for you so far?
  7. W

    ME caused by squeezed nerve?

    I was a patient of Dr Robson in 2010 and most of my CFS symptoms resolved. Very expensive and initially many adjustments. I would stay for 5 days with adjustments everyday. Six months later needed more adjustments. December 2014 went for adjustments I was not doing well had gone too long without...
  8. W

    Transdermal B12 oils

    Hi Gary, are you doing better? Has Greg been able to help you? I have been working with Greg and using the oils just wish it would work faster, having ups and downs. Lena
  9. W

    Transdermal B12 oils

    Hi Johnmac, how are you doing on the B12 oils? I have been using B Group and Aden/Methy B12 for a few months and am better with ups and down. I also take 150 mg B2 vitamins. Their are days I am not well, how long do you think it would take to get to normal. I have CFS with Epstein Barr, Greg...
  10. W

    Transdermal B12 oils

    Hi Gary, how are you doing, has your sleep improved? Wanted to update my progress on the B12 oils. Started B2 150 mg supplements early part of January and started to titrate down the Effexor. January 20 received B Group oil and started with one squirt and the next week went to two squirts...
  11. W

    Transdermal B12 oils

    Hi Lynn, Gary, Little Bluestem, Pennyl, Greg said the problem when you are on SNRIs and you start to actually start making serotonin, dopamine, nor-epinephrine, epinephrine, etc and you start methyl B12 it will be like a massive overdose of the neurotransmitters. So it is a juggling act. We need...
  12. W

    Transdermal B12 oils

    Hi Gary & Lynn, received B oils yesterday "B Group", used a dose after dinner and did not sleep well. Took a dose this morning and will take it in the morning from now on. I can't take Methyl B12 until off of Effexor so opening the 150mg capsule and taking 4 extra beads out each day. In one...
  13. W

    Transdermal B12 oils

    Hi Lynn, how are you feeling? I am new on this forum and have got in touch with Greg and ordered B12 oil. In all the years of illness with CFS I have tried everything even Freddd's protocol which was like a miracle for 3 days and then I was crashed. Last year found out I was homozygous A1298C so...
  14. W

    Transdermal B12 oils

    Hi Gary, what is your opinion on folic acid. Greg says you need it and Dr Ben Lynch says not to have it. My chiro who treats 5 patients with MTHFR says folic acid and sugar are poison for us. Do you eat gluten and anything with folic acid in it, do you have any diet restrictions? Just checked...
  15. W

    Transdermal B12 oils

    Hi Gary, so glad you reply to me. Did you have CFS with Epstein Barr? Also I am guessing you have MTHFR but not my mutation otherwise you would have depression. It is the worse part of it. Still have not received my B12 oils. Greg wants me to get off Effexor so I can take the B12 methyl which I...
  16. W

    Transdermal B12 oils

    Hi I am new here and just ordered the B12 oils from Australia. Are you still doing well on the oils? I am pretty sick with CFS and did talk to Greg and he has 50 people who have CFS who he is helping with the oils. If you don't respond that is OK you are probably out living which I am hoping...
  17. W

    Transdermal B12 oils

    Greg, how many people on this forum have been using B12 oils and doing well? I guess it does not matter I already ordered the B12 oils without methyl and hope it can give me some improvement until I get off my antidepressant and can tolerate methyl. Thank you for you for replying. Lena
  18. W

    Transdermal B12 oils

    Hi Gary, I am new here and have been following this thread. I have had CFS for 14 years and last year found out I was homozygous a1298c. My homozygous mutations are VDR Bsm, MAO-A,R297R, BHMT-02 Heterozygous mutations are COMT V158M, COMT H62H, MTRR A A66G, MTRR A664A, BHMT-08, AHCY-02...
  19. W

    Oral Systemic Balance - by Darden Burns

    Oral Systemic Balance Hi Wayne, I think I posted to you before on Pro Health about the Atlas Profilax and how it relieved most of my pain and fatigue. The partial remission lasted about 18 months and it all came tumbling back. I also have tried over 30 different types of therapies including...
  20. W

    B-12 - The Hidden Story

    Sunday, check your PM messages. Lena
  21. W

    B-12 - The Hidden Story

    Hi Sunday, I sent you a PM hope it went through. I will leave for Tacoma, Washington next Sunday. I am still on the B12 protocol. Will let you know what I find out. Lena
  22. W

    B-12 - The Hidden Story

    Hi Summer, I have not heard from you for awhile and was wondering if you are having any improvements. I am still on the B12 protocol with some improvement but not as much as I would like. Five years ago I met two ladies in So. Lake Tahoe, we were all having chiropractic treatment for FMS/CFS...
  23. W

    B-12 - The Hidden Story

    Hi Freddd, please check your private message. Lena
  24. W

    B-12 - The Hidden Story

    Hi Sunday & Joseph, This B12 treatment is challenging but doing nothing is much worse. I also desperately need this protocol to work. Last week I found out my thyroid is extremely low so the Dr. raised my Synthroid & Cytomel. I have been on the same dose for years, he doesn't know why it went...
  25. W

    B-12 - The Hidden Story

    Hi Joseph & Sunday, thank you both for your concern. Its a challenging path we are all going on together I always appreciate your input. I know this protocol is the answer for many of us but it is so precise and each one of us have our own sensitivities to anything we put in our mouth. When...
  26. W

    B-12 - The Hidden Story

    Sunday, I need words of encouragement things have gone bad this week. I was doing so well for several months. I was not on any critical cofactors and wanted to feel better and tried the l-carnitine fumurate and it made me sick even that nasty nausea came back. I stayed on it 2 weeks than...
  27. W

    B-12 - The Hidden Story

    Hi Freddd, I want to order TMG from iHerb but I don't know which one. Could you let me know which one you use and what dose I should start with? Thanks. Lena