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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. J

    Gordon Medical Associates (Collaborator with WPI) - Mikovts lecture and XMRV Findings

    GMA Researcher's Response to How/Why The GMA Cohort had higher negative results. Question sent to GMA regarding what appears to be (and may not be) a possible disparity of high negative results among the GMA cohort. The general WPI cohort(s) have an apprx 2% negative (after refined testing...
  2. J

    Gordon Medical Associates (Collaborator with WPI) - Mikovts lecture and XMRV Findings

    ...sorry for the delayed reply....i tanked. Cort, my first appt was lasted a very long time, can't remember for sure now but something like 3 hrs or so, maybe longer. I have to say this was the first and ONLY time I have ever seen any doctor who REALLY looked at prior labs. It was a bit...
  3. J

    Gordon Medical Associates (Collaborator with WPI) - Mikovts lecture and XMRV Findings

    Hi Wayne, Jen, SpecialK, Forebearance Wow, feels like reunion! It's so nice to see y'all!! HopeI didn't leave anyone's name out, if so sorry, please forgive. My brain is scrambled by this point in this illness. Yes it is very hard for me to post these days which is why I am not around...
  4. J

    Gordon Medical Associates (Collaborator with WPI) - Mikovts lecture and XMRV Findings

    I am among the GMA study group. No results for one year, then suddenly 1 wk before Mikovits presentation a flurry of us received "negative" results, but we're still testing (??) Confusing. More confusing is that the original Mikovits research showed findings of 67% to 95% positive in WPI...
  5. J

    Klimas: Plasma cytokines in women with chronic fatigue syndrome

    Cort, this statement about IL8 being lowered is confusing in contrast to this statement at http://aboutmecfs.org/blog/?p=969 : "A Special Group of Patients - In this case Whittemore Peterson Institute was refreshingly direct in how they ’stacked their deck’. They stated the study participants...
  6. J

    "CDC Damage Control: ME/CFS Research Group Relieved of Duties"

    The CDC's Previous Diversion of Funds Earmarked by Congress for ME/CFS I have read similar statements and yet have not seen a summary written or lnk to more information confirming this. Not suggessting at all that it doesn't exist. I am sure it does. We just want to make sure we know where...
  7. J

    "CDC Damage Control: ME/CFS Research Group Relieved of Duties"

    CFS Activism still Important re CDC/Reeves This post is just something I feel I need to say, though it may not be particularly in response to things being said on this thread. Please let's ensure that we don't assume the CDC has thrown Reeves under the political bus. There was a new...
  8. J

    XMRV-SF Bay Area Folks

    For Those in SF Bay Area Hi Gracenote, thanks for saying hello and asking others about Skype. I wonder if any of us are dealing with the environmental issues from this SF Bay area industrial accident along with all the other things ???? Note the bolded part below...
  9. J

    XMRV-SF Bay Area Folks

    ~~Waving Hello to SF Bay Area "Neighbors"~~ Nice to see neighbors on this board. It makes me feel slightly less isolated in some odd illogical way. I am also bedridden and disabled ...5 yrs now. Sick for much longer. It has taken years of evaluating milestone pattens of my...
  10. J

    DR OZ TODAY (12/3) on CFS/XMRV

    Thank you Dr. Donnica---Great Job!!! Dr. Donnica you handled this wondefully, especially given the short segment and editing. Good job at enlightening Dr. Oz and the public, thank you. Hopefully Dr. Oz will have interest in continuing shows presenting further information showing how...
  11. J

    ALERT: Teitelbaum to be on DR OZ SHOW this FRIDAY!

    Help Educate Dr. Oz--Contact Links Enclosed Suffice it to say the show segment was bitterly disappointing. It misinforms the public, family members, and employers. It hurts and has created lots of distress in the CFS community. I have been stressing over this for the past 4 hours trying to...
  12. J

    Root Canals

    Thanks Wayne for this thread....so important and yet so little posted on most boards on this partcular contrbuting cause of chronic illness...root canals. I am the person w/infected root canals Wayne referred to in this thread; very sick though no idea how much of my illness may be infected...
  13. J

    The H2S Test Poll Part I: ME/CFS Patients

    Cost of Test? (US$?) can someone please post on cost of test? thanks?
  14. J

    From Dr. Cheney: CFS & Stem Cells - a Warning

    Dr.Cheney Hello to all, I am new to this board but have posted for awhile on ProHealth & LymeNet. Mostly too sick these days to read or post much. Been bedridden for much of the past 4 yrs (thank God for a laptop). On Dr. Cheney, like Cort, I just don't know what to think anymore. When I...