• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. *GG*

    CPAP/APAP machine helped any cfsers??

    When is the last time you saw your Dr with the CPAP machine? Sounds like it needs to be adjusted, increase the setting for air pressure to keep airway open, but I'm not a Dr. You shouldn't be getting up and gasping for air. You might also want to see if you can be prescribed Oxygen, that could...
  2. *GG*

    How Cigna Saves Millions by Having Its Doctors Reject Claims Without Reading Them, ProPublica March 25, 2023 - UPDATE: CIGNA IS BEING SUED OVER THIS!

    https://www.washingtonexaminer.com/restoring-america/faith-freedom-self-reliance/when-medicare-reform-goes-wrong
  3. *GG*

    Fragmented sleep - too many dreams, not enough deep

    I used to be this way when I started Remeron/mirtazapine, I hadn't dreamed in years. Is that the case with you? Haven't been on this compound for long? GG
  4. *GG*

    My Keto Experience

    i just eat coconut oil, I used to be able to buy online at a great price, but I find something with a little taste in the store now. I bake a lot of chicken and like the skin crispy, so I pour it into a container, and am now eating that fat. I used to give it away, good in soup etc.. Been on an...
  5. *GG*

    Woman with Severe ME Left to Starve to Death in NHS Hospital

    Sad :( https://www.zerohedge.com/medical/overburdened-nhs-pushes-more-brits-go-private
  6. *GG*

    Housing or Section 8, etc in the USA

    Just apply and see what they say. If you live in the town, you are higher up on the list compared to people who are Not. Some States have an application that can apply (just about) Statewide. So instead of applying to 5 or 10 towns, as an example, it could cover 20 plus? Not every town/City is...
  7. *GG*

    I have developed an arythmia

    Have you been recently vaxxed? Last year or so? GG
  8. *GG*

    Women Have Stronger Immune Systems

    Definitely different if they can carry babies! GG
  9. *GG*

    NIH team documents various types of neuropathy after COVID vaccination

    Not a study, but this is an interesting thing posted on Govt website. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9062939/
  10. *GG*

    Does IBS cause Umbilical Hernia??

    I haven't experienced those symptoms, but I did have umbilical hernia surgery around 5 years ago, also been diagnosed with IBS, but never knew it until applying for disability, and reviewing my medical records. GG
  11. *GG*

    To which lengths do you go to avoid Covid19?

    I hope to catch it, if it kills me, so be it. Vaccines seem like garbage anyways, and my trip down this illness seems to have started with a flu vaccine! GG
  12. *GG*

    At-Home Study for Men from Stony Brook University

    Up to $100, I'll pass. GG
  13. *GG*

    Anybody ever found anything to help unrefreshing sleep?

    I 1st tried trazadone, got up to 150mg I think a night. Remeron was much more helpful. So after being on Remeron for about 10 years, it wasn't as effective. So I take 50mg of trazadone along with the max Dosage of Mirtazapine of 45mg. GG
  14. *GG*

    Anybody ever found anything to help unrefreshing sleep?

    What I found that helps me feel better, when I wake up, I feel more rested than before. Remeron/ mirtazapine, I don't feel great, but I don't feel like I haven't rested/slept at all! GG
  15. *GG*

    CPET Test for disability?

    Well you are supposed to exert yourself to your maximum on both days. Not sure what you mean by sprint? So just a 30 second interval? I think you start off slow, they are monitoring (capturing I think) all your exhales, how they can say you are at diminished capacity, no fooling the test! GG
  16. *GG*

    Has anyone tried Dry needling for Myofascial pain syndrome?

    I've been diagnosed with Myofascial, not sure that is why I was referred for dry needling though. Also been diagnosed with Fibromyalgia, and just lots of neck and should tension/pain. I had it done at a PT (physical therapy) office a few years ago. The practitioner was pretty good at it. But...
  17. *GG*

    Starting Mestinon treatment first week in January - any advice?

    I took the Max dose to only get Bels Palsy, but was then prescribed steroids and all is fine now :) GG
  18. *GG*

    CPET Test for disability?

    It's intense, or should be. You are supposed to exercise to where you cannot anymore. I had the test done in 2010, was shown the door by my employer in 2013. I think my shitbag lawyer said it was helpful. I didn't have the test done after applying, so not sure how helpful it was, but I would...
  19. *GG*

    Concerns about Work Accommodation in US

    I worked ill for 10 years, it sucked! Then my Lawyer never filed a claim against my LTD, he said he didn't know I had one? Really? That is cheap insurance! So he really screwed me over, but I guess I don't have those shit loopholes to jump threw now. I had FMLA leave for years, and started off...
  20. *GG*

    Why US medical care stinks and is exorbitantly expensive CNBC

    So what's the excuse for the UK and Canada etc...? GG PS Not sure I would take much advice from CNBC. I hear they let Hedge fund managers get on there and trash companies, just to make Millions or perhaps Billions off of there downfall! I believe in creative destruction, Companies should not...
  21. *GG*

    Should I take flourinef?

    I've been taking 0.3 mg for years now. GG
  22. *GG*

    Problems with taking DHEA

    I have bloodwork done at least 1 time a year. GG
  23. *GG*

    Problems with taking DHEA

    Ok, my Dr took me off of the DHEA back in April. GG
  24. *GG*

    Meet The Scientist – Professor Jo Nijs

    Is this posted someplace else with a Internet link? I would like to share it on a Group in Facebook! GG
  25. *GG*

    An Update on the Mestinon Clinical Trial

    Unfortunately no, I am in the USA. GG
  26. *GG*

    An Update on the Mestinon Clinical Trial

    What country you in? GG
  27. *GG*

    An Update on the Mestinon Clinical Trial

    So no results or did my tired brain miss it in the write up above? I saw him talk in Hanover, NH on this subject. So I asked my specialist to prescribe me this drug, he did. I tapered up to the Maximum dosage. I ended up developing Bell's Palsy, thankfully that resolved (with further medical...
  28. *GG*

    Flu vaccine

    My illness with ME/CFS seems to have been brought on by a flu shot. I would go home 1 day a week and sleep for 12 hours solid! I had the flu badly the year before, so thought I was being smart by getting a flu shot. This was 20 years ago, and there was no Internet or knowledge on my part of the...
  29. *GG*

    Persistent sore throat (PVFS)

    I've basically had a sore throat for over 17 years now, my illness started with EBV/mononucleosis. GG