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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. K

    L-Metholfolate Help

    Thankyou Freddd much appreciated.
  2. K

    Over active immune system and Imunovir

    I really don't want to be taking anything that stimulates my immune system, i need something to slow it down. I also suffer from really bad sensitivity to sound, I swear i can hear someone cough 50m away and it sounds like my head will explode. My brain is defenetly overstimulated, i can't...
  3. K

    L-Metholfolate Help

    Hi Freddd I didn't see your reply. I sent you a PM. Not sure i understand what you said that taking Metafolin + Methylb12 is dangerous and can cause B12 deficiencies - i thought they were supposed to be taken together ?
  4. K

    Over active immune system and Imunovir

    I seem to have the same problem. I never get sick and haven't for many years. My immune system is also in overdrive as I have high thyroid antibodies, my brain never switches off unless i take medication, feel like i am on speed 24/7. I have never taken Imunovir and don't know much about it, but...
  5. K

    L-Metholfolate Help

    would taking Methyfolate without b12 cause the b12 to drop further ?
  6. K

    L-Metholfolate Help

    would taking Metafolin with B12 cause the B12 to drop further ?
  7. K

    L-Metholfolate Help

    No a bit of constipation but nothing serous. I did a google search for the causes of "strawberry tounge" and it came up with one of the possible causes being folate or B12 deficiency, it can't be a folate problem as i am taking 800mcg of L-Methylfolate, but maybe it is causing the B12 to get...
  8. K

    L-Metholfolate Help

    Hi Guys I started taking L-Methylfolate (Amipro - metafolin) a week ago, started taking half a tablet 400mcg and it seemed to be going okay I upped the dose to 800mcg 2 days ago. I got a bit of a sore throat / flu for a few days and my tounge is really sore - feel like you do after...
  9. K

    Simplified Methylation Protocol Revised as of Today

    Hi Rich / Anybody Can you tell me if Metagenics Folapro and Solgar Metafolin are the same ( ie L-Methylfolate), i see that the Folapro is called L-5-methylhydrofolate ? It is a bit confusing, i believe that the solgar product is the same as Deplin and was now told my the shop that the Folapro...
  10. K

    Deplin for depression

    Hi has anybody tried Deplin ? . I have read some encouraging stuff on the internet with regards to it helping with depression or helping your antidepressant work better. I would be interested if anyone has some feedback with regard to this. I would much rather be taking something that may be...
  11. K

    Where are we on understanding and treating ME/CFS today?

    Hi Rich, I have been reading some of your theories with great interest. I recently had a test done for Urinary Kryptopyrrol (HPU) and it showed that it was elevated , normal range 0 - 200 ng/ml and mine was 395.870 ng/ml. I have been supplementing with Zinc , Selenium, Cortico B5 B6...
  12. K

    Recancostat / Reduced Glutathione Anyone ?

    Has anybody tried this product, would be interested to hear if it helped. I read an article about a woman in the UK who said it helped her recover. Thanks
  13. K

    Chlorella / Spirulina Reaction anybody ?

    I have been taking 2 tablets of Chlorella and 2 of Spirulina a day. I have had really sore muscles and bones to the point that even my intestines were aching. I can only assume that it must be the chlorella and spirulina. I stopped it on Sunday and the muscle pains and aches seem to have...
  14. K

    ME doctors in South Africa

    Thanks for the info. I used to be a patient with Alta Smit - she is the doctor who left the country to take up an academic post overseas. I have seen Dr Cecil Jardin about 10 years ago, tried the antibiotics for 4-5 months with not much improvement. Problem is that everyone that was tested for...
  15. K

    ME doctors in South Africa

    Does anybody know of any ME/CFS doctors in South Africa ? I have had ME for 18 years and the doctor who used to deal with ME in this country, took a post with Heel overseas. There doesn't seems to be anyone here who knows what is going on in this part of medicine. We have great doctors in South...