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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. R

    Mold options

    I would check out FB`s mold help pages (groups). There are hundreds of folks who are ill from mold. I too unforunately fall into this catagory. You can also look for someone in your area or get a referal from one of the mold groups. Yahoo also has a sick building group that is very helpful...
  2. R

    Any Lyme-knowlegeable people? Could I have Lyme?

    Sorry about that.. I`am new here. What I was trying to say is that it sounds like Lupus to me nore than Lyme. I too suffer with chronic facial pain as well as head pain. No definative dx. Yours does sound a bit like trigeminal neuralygia the way it hits the portion of your face as it does...
  3. R

    Any Lyme-knowlegeable people? Could I have Lyme?

    I have to agree with the previous poster. This sounds to me more like "lupus" than Have you been tested for lupus? Because you are saying you have a butterfly shaped rash which is a classic symptom of it. All the conditions that cause a butterfly rash are listed here...
  4. R

    I would love some help for my wife - about to have mercury fillings removed !

    I agree with lampkid, but I do think that even after remove of amalgum if she continues on this path she may be too ill to chelate. I know I found I removed all me amalgum 6-9 months ago and I still can not get my body in shape for chelation.