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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. P

    B12 plateau?

    Hi Mogy, I'm happy to report that many of my symptoms have improved significantly. Those that haven't (fatigue and anxiety) may simply be due to current life circumstances. I was surprised (based on how much my symptoms improved) to find that my B12 was not continuing to rise. I am hoping...
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    B12 plateau?

    Rich, Thanks for taking the time to familiarize yourself with my previous postings and for the insights!
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    B12 plateau?

    Hi all, I have been on sublingual hydroxy b12 for the last 4 months (following a b12 deficiency diagnosis)... slowly increased it up to 2000mcg a day. My serum b12 was tested several times and gradually increased from 150's up to upper 400's on my way up to the 2000mcg. I've continued to...
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    B12 dropping with sublingual supplements? vitamin C interference?

    Thanks, I appreciate the info!
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    B12 dropping with sublingual supplements? vitamin C interference?

    Thanks, this is good to hear! Did you use a probiotic that ended up particularly helping during/after the antibiotic treatments?
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    B12 dropping with sublingual supplements? vitamin C interference?

    I have worked my way up to 500mcg/day over the last week and surprisingly my serum levels are now 270, up from 157 only two weeks ago. I realize that's still very low, but am glad to see an increase of any sort at this point. Doctor also ran an h. pylori test, which turned out positive. Not...
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    B12 dropping with sublingual supplements? vitamin C interference?

    Sorry for the delayed response, but thanks again nanonug for replying. I'm not sure whether potassium is causing my shaking/muscle twinges at this point- I have been eating very high potassium foods (including blackstrap molasses) and notice no difference. I have extreme calf/hamstring...
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    B12 dropping with sublingual supplements? vitamin C interference?

    Hi nanonug, Thanks for replying again. Within minutes of taking methyl b12, I became so sedated that I could barely keep my eyes open, and was forced to lay down until I slowly became more alert over a couple hours. Following this, I noticed a severe decrease in mood, felt like crying (this is...
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    B12 dropping with sublingual supplements? vitamin C interference?

    I purchased some potassium, but really like the idea of molasses, thanks for suggesting it. I am also wondering if any of you can tell me whether a negative response to methyl B12 automatically indicates a problem with methylation? (Sorry if this is a silly question - much of the info...
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    B12 dropping with sublingual supplements? vitamin C interference?

    Thanks all for taking the time to respond.... will definitely be upping my dosage right away (starting with a combo of hydroxo and dibencozide), and crossing my fingers that I don't have the negative response to it as I did with the larger dose of methylb12.
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    B12 dropping with sublingual supplements? vitamin C interference?

    Against my better judgement, I decided to follow the advice of my GP. After finding my B12 to be 205 (mma 0.38, I think), she recommended 2 weeks of 100mcg b12 (no specifications of type/method) and then simply the RDA. We suspected the low levels were due to a nearly vegan diet for 20 years...
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    Low B12 and side effects.

    Thanks for the reply, Mogy. I think your suggestion of breaking the methylB12 into smaller amounts is a very good one. I have ordered some more supplements and they should be arriving soon. Can't wait to start feeling healthier!
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    Low B12 and side effects.

    I am slowly coming around to the fact that my body will be healthier with the inclusion of meat. Surprisingly (after 20 years of zero interest) I have been drawn to the smells of various meat sources over the last year or so. I suspect in the coming weeks I will be gradually reintroducing some...
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    Low B12 and side effects.

    Hi Freddd, I appreciate you taking the time to reply. I will continue to read more. I do have one other question, regarding Omega3. Have you heard of anyone using vegetarian-sourced omegas with success? As I have a sensitive stomach and have not yet reintroduced any meat sources into my...
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    non-fish sources of omega 3?

    Has anyone tried the Slice of Life Gummy Omega 3-6-9 Fish-free supplement? The company's website says the omegas come from cranberry seed oil rather than fish oil. I've never heard of cranberry seed oil as a source of omegas before.
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    Low B12 and side effects.

    Hi, I should first start by saying that CFS is not a part of my diagnosis, so I hope it's okay that I'm posting here - after much searching, this seems to be one of the best places on the web for folks with b12 knowledge. I am a 33yo F. About a month ago, I went to my doctor with symptoms of...