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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Lipkin finds biomarkers not bugs

    Interesting lipkin findings.....funny....Dr.shoemakers a functional doctor feels mold a fungi bacteria is the trigger. Some people with bad detox genes get implicated. His theory revolves mold affecting leptin in hypothalamus, leaky gut, poor ATP production,sleep problems, cytokine...
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    Lipkin finds biomarkers not bugs

    YES! IT COULD BE A COMBINATION OF OUR BAD DNA DETOX GENES AND MOLD( it's a bacteria). I HOPE ALL CFS PATIENTS TAKE A LOOK AT WHAT FUNCTIONAL ALTERNATIVE DOCTORS THAT SPECIALIZE IN MOLD and the connection IAN LIPKIN HAVE FOUND... A POSSIBLE BACTERIA OR FUNGI EXPOSURE! LEPTIN HORMONE! IMMUNE...
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    Gilbert's Syndrome

    I do to. Cytochrome p450. It explains why we are chemically sensitive and have detox pathway issues. Genova labs has a good gene detox profile test. Gluthathione deficiency plays a role.....It explains why we are so toxic w heavy metals, etc. Our blood is toxic acidic perfect place for viral...
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    hydrogen peroxide

    I want this to be a warning. I had 12 consecutive hydrogen peroxide IV's. I felt terrible during treatment. I assumed it was a herx reaction. I literally had to stop treatments because I was so sick. Well it's been two and 1/2 months since I stopped. I am now bedridden. It obviously was too much...
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    Infrared sauna

    I have a infrared red fir sauna. I used it for 2 months successfully. Being abe to sleep better and have mre energy to function at a 70 percent. After that I relapsed badly leaving me only a 4 hr window of functionality. It was devastating. You mentioned adrenal cortisol burnout. Could this be...
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    hydrogen peroxide

    Sushi, Thank you for your help. You are a true angel. Just wondering what was your level illness when you started iv treatments. Homebound ? From 0 to 10 . 10 Being recovered I also wanted to ask you about fir sauna. I read you had one and it helped you. I actually bought one. I used it...
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    hydrogen peroxide

    Maybe. I would try it again if you have the cash pricey.
  8. D

    hydrogen peroxide

    Sushi, Thank you for responding. I really appreciate your help. It gives me hope because I am feeling pretty bad. I going to stick to it. I started w three a week And now docs wants to put me on two a week. I was homebound so I figure I would try it. It's so hard to find people who have tried...
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    hydrogen peroxide

    Sushi, I am on my 11 treatment of hydrogen peroxide and vitamin c iv ? I am getting a lot die off. Feeling exhausted. Is it worth it? For how long did you do them ? How many times a week? Thks Dolche
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    hydrogen peroxide

    Sushi, I'm on my 11 hydrogen peroxide iv. I am having terrible die off? Is it worth it? Do you think it helps. How many iv a week did u do? N for how long? Thks, Dolce
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    hydrogen peroxide

    uote="Sushi, post: 293948, member: 47"]I have had IV hydrogen peroxide which did indeed kill a lot of pathogens. (I had about 20 IV treatments) I also had a lot of die-off and it was hard on the veins though. They don't just use the 3% stuff you buy in the pharmacy! Nor is that the type you...
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    Natural Alternatives to Rituximab?

    All you have to research is iv nutraceuticals protocols for cfs. It falls under orthomolecular medicine many have been help by highdose iv vitamin c and hydogenperoxdide iv,myers cocktail iv, gluthathione, plant sterols. They are extremely beneficial if you stick to them for months based on your...
  13. D

    Famvir or not?

    I will be trying famvir 250 mg. 2x day and night. However, I'm so sensitive. After day 2 I feel mire tired. I guess it's working??? I hope. Dolche
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    No inflammation, but low ATP, confused.

    Rich, Any thoughts on high dose vitamin c iv? Thks Julia
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    Nutrient IVs

  16. D

    Sauna

    Thank you for your post. I started sauna therapy 2 months ago. The first month I started slowly by the second month I was doing 30 minute sessions everyday. I went from homebound to being able to run three errand a day. I was driving again. However, end of second month I felt my hormones were...
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    Sauna

    Cort, I just got infrared sauna. I did it for 2 consecutive days. 30 minutes over 100 degrees. I sweated. After first day I was a bit tired. But the next day I was completely depleted could barely function severe PEM. I'm very concerned. I may be too weak for two days. Any protocol you...
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    Dolche

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    Sauna

  20. D

    Ampligen or Imunovir...Which to choose?

    Hi! Evangelina.I'm a 39 year old. I Just ended my second month of Ampligen 511 trial. It has been very tough on me, my family, and loved ones. I wanted to know if u had started your treatment and how you are doing. I had to lower my dosage because symptoms were overwhelming me. If you would...