• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    sorry i want to die, 33 years old and early menopause.....

    Hi, @Berzerkerina, I am sorry you have such a diffcult time :( I have read about patients in german ME/CFS-online-groups (cfs-treffpunkt.de , https://www.facebook.com/groups/292707130807803/ ) who have endometriosis. In these groups is often posted too much quackery and pseudoscience (for my...
  2. L

    Links to media coverage of the Naviaux study (Aug 30, 2016)

    German popular science magazins scinexx "CFS: Anomalien bei 60 Stoffwechselprodukten entdeckt" http://www.scinexx.de/wissen-aktuell-20555-2016-08-30.html spektrum.de "Ein Bluttest für das Chronische Erschöpfungssyndrom?"...
  3. L

    Dear Dr Collins, Can the NIH spare a few dimes? by ex Washington Post journo with ME/CFS

    on Facebook it was posted by the blog's fb-page for example https://www.facebook.com/permalink.php?story_fbid=927596837278717&id=135707836467625 (you can like and share)
  4. L

    The End ME/CFS Project: History Taking Root

    via CFS research Stanford Facebook-page https://www.facebook.com/cfsresearchcenter/posts/885367124868411
  5. L

    Nicorandil.....A role in treating CFS

    Is it an approved drug in Norway? pilot trials could be more difficult if not?
  6. L

    Unintended Consequences of not Specifying Exclusionary Illnesses for SEID (Jason 2015)

    I like it, seems more accurate then "post" something ... but then I just saw this poster on Facebook, it's about Lupus. "over doing it yesterday means ... today is canceled" sounds like a delayed response, hm https://www.facebook.com/tom.kindlonpwme/posts/860349300726264
  7. L

    Help me compile a list of research-funding ME/CFS charities in each country

    yes, it is seperated, you can donate here: http://www.lost-voices-stiftung.org/crowdfunding-forschung-me-cfs/wie-kann-ich-spenden/
  8. L

    Help me compile a list of research-funding ME/CFS charities in each country

    Crowdfunds & funds for specific projects Germany EBV related ME/CFS research (Prof. Scheibenbogen, Charité Berlin) - Fundraising through the ME/CFS-foundation 'Lost Voices Stiftung' http://www.lost-voices-stiftung.org/crowdfunding-forschung-me-cfs/forschungsprojekt-berliner-charit%C3%A9/
  9. L

    Hornig/Lipkin cytokine study: Foreign language coverage

    @luludji Article in Dutch in National Geographic: http://www.nationalgeographic.nl/artikel/overtuigend-bewijs-cvs-is-een-biologische-ziekte ( via https://www.facebook.com/pages/MECFS-Evolving-Science/122950357787779?fref=nf )
  10. L

    Hornig/Lipkin cytokine study: Foreign language coverage

    From Norway http://forskning.no/2015/02/kronisk-utmattede-har-et-lopsk-immunforsvar
  11. L

    Discussion of full IOM report

    It is possible to get a ME/CFS diagnosis without pain according to the CCC. "There is a small number of patients who have no pain or sleep dysfunction, but no other diagnosis fits except ME/CFS. A diagnosis of ME/CFS can be entertained when this group has an infectious illness type onset."
  12. L

    Articles on the release of the IOM report

    Spektrum der Wissenschaft (German popular science magazin) http://www.spektrum.de/news/chronisches-erschoepfungssyndrom-soll-neuen-namen-bekommen/1331881
  13. L

    MEandYou: 90 Days to Raise $1.2 Million for Rituximab Trial!

    Thank you Maria for this crowdfunding initiative! :thumbsup: I would like to translate your blogpost into German, is this ok for you? And there are others, who would like to tanslate the subtitles of your promotion video into German too. @ purple thanks for the signature instructions
  14. L

    What do you want to ask Fluge and Mella?

    Thank you for your great fundraising initiative! :) My question is, if objective assessments like pedometers will be used in the trial? And I would like to know more about the ongoing trial in very severe ME.