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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Anyone on beta glucans/immiflex?

    Hello - well, I started taking it today and I felt a difference straight away. It's definitely doing something - although it wasn't entirely pleasant - felt like being a bit overstimulated, and I have a bit of a headache, although I have been having that anyway. It's probably just the body...
  2. M

    Anyone on beta glucans/immiflex?

    Thanks, Chris - do you mind telling me - what kinds of symptoms did it help you with? Thanks. :) I think I am going to try this anyway, but curious as to what to expect.
  3. M

    Anyone on beta glucans/immiflex?

    Hi - I am thinking of trying this as part of my protocol: http://www.facebook.com/pages/ImmiFlex-Beta-Glucan/167169054614?v=info http://en.wikipedia.org/wiki/Beta-glucan Anyone have any solid positive experience with this type of thing? I don't have many "immune"ish symptoms, but have...
  4. M

    Tinnitus

    Hi. I wanted to know how many other people have tinnitus as part of their ME/CFS? I have it and it's been constant since I became very ill. It varies - gets a bit quieter when I am feeling better and louder when I am feeling worse. It is definitely a good predictor of how I feel generally with...
  5. M

    Question on the Simplified Treatment Approach

    Hi Rich - thanks for your response. That is very helpful. I am definitely doing much better on the Q10 + glutathione etc and I just started thyroxine and think it's helping even more. My life really has totally changed in 4 months. I do try to understand everything I am taking but I confess not...
  6. M

    Sauna

    I have a FIR sauna and it's amazing. It also wasn't THAT expensive - a few hundred pounds - I think someone mentioned a figure of 2000 dollars! I was skeptical before I actually tried it. It does tire me out - as I get chest pain I have to be careful with it, but I have learned to use it...
  7. M

    Vitamin D

    I take 2,000 IU D3 every day as part of my treatment protocol, which is working really well! In the summer I try to get light on my skin also, but it's hard in the winter. D2 is also in one of my other supplements. I have read a lot of great things about taking D3 anyway even if you are not...
  8. M

    Rooibus "tea"

    I've got some but haven't tried it yet. I usually have peppermint and licorice root - amazing. I didn't know that roobios was meant to be relaxing and sedating... did you find it more relaxing and sedating than other teas? I have crazy sleep problems and am on diazepam - in combination with two...
  9. M

    Any contact with Asia before the onset of ME/CFS?

    Yes, absolutely. I got sick after getting glandular fever when I was 17 but had almost completely recovered. This was almost 10 years ago. 2 years ago I went to Japan healthy. I came down with a food-poisoning type thing in Japan, but it was a weird kind of food poisoning - I wasn't sick that...
  10. M

    Question on the Simplified Treatment Approach

    Hello. I am new here and don't really know much about many of the discussion topics! I just discovered this board and it's fantastic. Anyway I do try to keep up in some way with treatments/advice etc but it's hard to take it all in. I am on Dr Myhill's protocol and have been on it for about 4...