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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. B

    BBC Radio 4: Children with ME

    When I saw the BBC News article, I instantly tried to find it from the Home page: http://www.bbc.co.uk/news/uk-england-40407174 Give it a try. Eventually, I discovered it buried in the local Bristol section - home of AfME. So why would they expose something so terrible without really...
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    BBC interview with Ron Davis

    Many thanks for reassuring our concerns and the information. I can appreciate Dr. Davis and our US friends would have naturally been very disconcerted & concerned, but it wouldn't make sense that IiME would have permitted any unnecessary insensitive and antagonising questioning from an invited...
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    BBC interview with Ron Davis

    Having reread Janet's post and the BBC journalist's initial question, it does support an investigation into Child Protection Cases - May I ask Dr Shepherd whether Jane Colby/Thymes Trust is also involved? Obviously, such a opening and probing question is enough to raise the hackles of anyone...
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    BBC interview with Ron Davis

    If anyone is unbeknownst to the Hillsborough Disaster, Operation Yewtree or Orgreave, examine how easily corruptible the UK media have been in the last 30 or so years. They accept what they were told by peers, police etc, and dont tend to fact-check because the UK hierarchical and sycophant...
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    BBC interview with Ron Davis

    Its very simple: Oxford CFS was conceived to lump PwME within. Those diagnosed with Oxford CFS have a concealed diagnosis of Neurasthenia/Somatisation - the patient's Neurosis is the cause of their symptoms. For that reason, Social Security/Benefits can be denied, saving the Govt Millions. The...
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    BBC interview with Ron Davis

    Unfortunately, the austerity cuts suggests the biopsychosocial model has been rolled out since the practice proved feasible for PwME: http://www.huffingtonpost.co.uk/dr-simon-duffy/the-misleading-research-a_b_9726490.html &...
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    BBC interview with Ron Davis

    I wrote an email to James Gallagher sometime ago which echoed much of what Ashley wrote. Sadly, apathy is rife in the UK with the disability/class system raising its ugly head. This is evident with how David Tuller is being shunned by the establishment. The UK govt have pretty much fanned the...
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    BBC interview with Ron Davis

    It is worth noting, since the SMC have various go-to 'science' journalists, perhaps they make sure they stick to their party line, rather than it being a network's agenda. This by no means supports the BBC's lack of integrity, but I believe all our main networks have links to the SMC, and...
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    BBC interview with Ron Davis

    Apologies for a little going off-topic. I saw Janet's post, and felt compelled to comment. Unfortunately, PACE collaborators has transmogrified ME so such to perhaps purposely create a conspiracy parody. They've stated a deceit for so long, too many believe it, regardless whether the science...
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    BBC interview with Ron Davis

    It likely is someone from the Science Media Centre London: http://www.sciencemediacentre.org/about-us/governance/ James Gallagher is listed along with other UK media Journalists. Worth recalling, the attack against ME patients in the UK began in the mid/late 1980s with a media smear campaign...
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    NIH intramural research program update

    This was the knowledge base back in 1978. Notice the reference to an 1940s study in which the 'putative agent can be transferred to monkeys.' But the study itself adds that suckling mice inoculated by material from one patient but no abnormalities were found at post mortem...
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    NIH intramural research program update

    Epidemic Myalgic Encephalomyelitis: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1604957/pdf/brmedj00128-0006b.pdf
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    Congratulations on IOM presentation

    It's been sometime since I last frequented PR, and after just hearing PR's ME/CFS presentation, I was compelled to say I am highly impressed. A huge well done and let's hope we are heard!
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    Merck vaccine scientist Dr. Hilleman admitted presence of viruses in vaccines!

    On this subject also listen to the following - thanks to Countrygirl for this find. See: http://www.progressiveradionetwork.com/progressive-commentary-hour/2012/1/24/progressive-commentary-hour-012312.html?forumid=331851
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    Merck vaccine scientist Dr. Hilleman admitted presence of viruses in vaccines!

    Transcript of audio interview with Dr. Maurice Hilleman See: http://www.naturalnews.com/033584_Dr_Maurice_Hilleman_SV40.html You can hear this interview at: http://naturalnews.tv/v.asp?v=13EAAF22CDA367BB3C2F94D2CD90EF7B&forumid=331851
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    New WPI and CDC XMRV sequences in genbank

    I'm afraid I can't take credit for this find, currer, that was a forum member elsewhere. It's worth starting a new thread for this subject, me thinks.
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    HGRVs - Constructive general discussion - for exploring HGRV research

    I think you've seen this, Bob, but it must be relevant: http://forums.phoenixrising.me/showthread.php?15863-MLV-caused-leukaemia-in-kids!&goto=newpost
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    MLV caused leukaemia in kids!

    This is old news, but I believe it maybe highly relevant, and I couldn't find any previous mention of it. See: http://www.sciencedaily.com/releases/2003/06/030613074858.htm See: http://www.nytimes.com/2003/06/13/us/cancer-risk-exceeds-outlook-in-gene-therapy-studies-find.html
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    New WPI and CDC XMRV sequences in genbank

    I have been thinking about government acceptance of a new global plague, and how this could cause differing countries relationships could become frayed. If the majority of Europe and North America have private healthcare and welfare systems, so in some way, a global plague could be accepted...
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    New WPI and CDC XMRV sequences in genbank

    Also see: http://www.patentstorm.us/applications/20100166797/fulltext.html
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    New WPI and CDC XMRV sequences in genbank

    According to the study, the JHK-3 strain is from the human B-lymphoblastoid cell line, Bob: http://www.ncbi.nlm.nih.gov/pubmed?term=Grossberg%20SE%20jhk Also see: http://www.patentstorm.us/patents/5827750/description.html?forumid=331851
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    New WPI and CDC XMRV sequences in genbank

    It does look like Grossberg has modified his entry on Jan 19th 2012 to remove "XMRV" (which is fine because when they use "XMRV" they really mean VP62, and in that sense "XMRV" is dead, in fact it has never been alive in nature), and replaced it with MLV-related JHK human retrovirus. See...
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    New WPI and CDC XMRV sequences in genbank

    See: http://www.ebi.ac.uk/ena/data/view/HM119591.1 Partial molecular cloning with novel consensus PCR primers of the MLV-related JHK human retrovirus
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    New WPI and CDC XMRV sequences in genbank

    But the JHK virus was isolated from a patient with ME in 1989: See: http://www.patentstorm.us/patents/5827750/description.html?forumid=331851 Obviously JHK isn't VP62 which seems to mean XMRV when it is used in negative publications, so Grossberg probably means JHK is a human gamma...
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    New WPI and CDC XMRV sequences in genbank

    Agreed Currer, I think the fact a 'prominent scientist' can write to another researcher, someone whom has been looking at gamma retrovirus in humans for over 20 years, to request him to change the name of the organism he discovered, is highly suspicious in itself, and only adds to the cloak and...
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    New WPI and CDC XMRV sequences in genbank

    Great use of the deity analogy, Alex. I would also consider myself agnostic, maybe borderline atheist, but that doesn't mean I would use my beliefs to gloat if a Catholic or Christian lost a loved one, or suffered a family tragedy, or just received bad news. Nor do I ram my theologian opinions...
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    New WPI and CDC XMRV sequences in genbank

    I am feeling quite embarrassed to receive such support for simply calling a spade a spade, and I am quite overwhelmed that my comment brought fellow people with ME to come forward and express their grievances. If this is a ME/CFS Forum as the title above suggests, I think it is time to give this...
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    New WPI and CDC XMRV sequences in genbank

    Hold on....whoops, I made a cock up...this is the denialist site isn't it, sorry, my bad. Please move along, nothing to see here.
  29. B

    New WPI and CDC XMRV sequences in genbank

    Not stating anything, just posting a recently modified Genbank entry. The JHK sequence was only added to Genbank as a XMRV on October 19, 2011. Could I ask, if the change is necessary, why wouldn't Grossberg add this change last month (December 14, 2011) when the entry was modified?
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    New WPI and CDC XMRV sequences in genbank

    Partial molecular cloning with novel consensus PCR primers of the murine JHK retrovirus of human origin, a variant of the Xenotropic murine leukemia virus-related virus (XMRV) http://www.uniprot.org/uniprot/G0WKJ6 http://www.ncbi.nlm.nih.gov/nuccore/HM119591.1...