• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. lifeonerth

    ME-friendly Primary Care Physician in Durham, NC area?

    I am so sorry to hear that!! It is absolutely ridiculous, especially when all you needed was help for sleep, which is an incredibly common need even among the general population! In that situation, the doctor should have at least treated you as he would any of the many others who I am sure...
  2. lifeonerth

    ME-friendly Primary Care Physician in Durham, NC area?

    OMG!! That sounds just like Duke! It is heartbreaking to think how far they set us all behind with their attitude, as they are considered a leader in the medical field! I see Drs. Lapp and Black, and Dr. Lapp said that although he is an associate professor of medicine at Duke, they will not...
  3. lifeonerth

    ME-friendly Primary Care Physician in Durham, NC area?

    Hello! I was "fired" by my last internist when I became disabled. He said he "was not qualified to treat my condition" despite the fact that I told him my ME was covered by my ME specialist, and that I just needed the same basic primary care that anyone else needs. This happened at Duke...
  4. lifeonerth

    Comment by 'lifeonerth' in 'Valcyte - 5 Months, 19 Days'

    I read all the time. It is a wonderful escape, and I also feel it helps push back the brain fog by giving my brain "exercise." Anything that gets me out of my body is wonderful! Good luck with the treatments and job situation!
  5. lifeonerth

    Comment by 'lifeonerth' in 'What a good day! (Loving the new comrpession socks)'

    Oh, and I use the opaque, not the sheer ones, so they are more sturdy!
  6. lifeonerth

    Comment by 'lifeonerth' in 'What a good day! (Loving the new comrpession socks)'

    I use the Sigvaris thigh-highs, and I get the tall ones so they come all the way to the top of my legs. I have tried a pair of the waist high ones, and I felt like I needed to become a Barbie-doll to fit into them comfortably, ha! I have lost weight since I last tried them, so maybe I will...
  7. lifeonerth

    Comment by 'lifeonerth' in 'Anybody trying an Oxygen and Saline infusion for chronic pain?'

    Hello- I was on saline infusions for a while but oddly they did not help me. I have severe POTS and have had ME/FM for 21 years. The thing to consider is that I am a bigtime needle-phobe, and the nurses the home care place sent were very bad at inserting the small, flexible plastic catheters...
  8. lifeonerth

    Comment by 'lifeonerth' in 'Please Don't Wake Me! I get to "live" in my DREAMS!!'

    This is wonderful, captures exactly how I feel about my dreams. They are more "real" and more vivid than my "real" life now. I get depressed every time I wake to this hell on earth now. Thank you for sharing this!