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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. m1she11e

    Anyone else tried Nimodipine?

    I just read this book as well and am looking for anyone that has tried the Nimodipine with Dr Mason's protocol. You would think there would be more information or personal experience with it. People seem to have tried it but not at the dosing she talks about and with the other supplements and...
  2. m1she11e

    Nimodopine - very interesting. Anyone have experieince with it or know about it?

    Any recent feedback on nimodopine? Some how I am just coming across the information on it. I bought the ebook by Kristina Downing-Orr. I cant seemed to find anyone that has tried the whole protocol by Dr. Brown.
  3. m1she11e

    Feel better on Prednisone?

    Yes, I've had several MRI's of the brain and spine with and without contrast over the years. It seems many people with CFS/ME have symptoms very much like MS.
  4. m1she11e

    Feel better on Prednisone?

    Oddly, I don't get the same miracle response to low dose hydrocortisone. The prednisone miracle resurrection only lasted a few days. A day after I posted this I felt super wired and tired. I am now trying the physiological dosing of HC again. I've tried it many times in the past and just...
  5. m1she11e

    Feel better on Prednisone?

    Thanks I appreciate the response. I've been tested for MS many times actually as I have a lot of neuro symptoms. I suspect it is all the info that is coming out all the time about our bodies being riddled with inflammation. The more I read, the more I think it is the inflammation. Thanks...
  6. m1she11e

    Dr Montoya and Valcyte

    Thanks heaps. I thought they were the same drug. Different names....
  7. m1she11e

    Dr Montoya and Valcyte

    Anything new on Colchicine?? I'm on valtrex 1gram, 4 times a day currently. I have been on high dose Famvir and Acyclovir for the last few years. My viral loads have just kind of bounced around in this time. Hhv6 significantly came down in the beginning but is up a bit again. Oddly, my...
  8. m1she11e

    Feel better on Prednisone?

    I've posted about this before but I'm back researching how to get the prednisone effect without using prednisone. This is the second time in my life I have taken the full dose of prednisone. I try to keep some on hand to get me through an outing I can't miss out on. That's usually 5-10mg a...
  9. m1she11e

    Prednisone got me out of bed, should I continue?

    Prednisone ALWAYS help me. It is fairly miraculous but I wont take it ongoing. The first time I had it for a tooth infection along with antibiotics. I felt SO much better. I thought it was the antibiotics originally because I had tried the physiological dosing of Cortef and hated the way I...
  10. m1she11e

    My recovery story, in case anyone is interested

    I think a combination of diet and other positive modalities could and have been the cure for almost every illness out there. No, it doesn't appear to work for everyone all the time. Hasn't worked for me as of yet. Im talking mainly about chronic illness like MS, Lupus etc. It probably will...
  11. m1she11e

    My recovery story, in case anyone is interested

    Thank you so much for sharing! I am going to start watching your videos because a lot of what you say just makes sense. I too have done the diet thing and the tapping and so on. Ive always believed it is the right combination and putting all the puzzle pieces together. I can really relate to...
  12. m1she11e

    COX-2

    Thanks Hip!
  13. m1she11e

    COX-2

    I research ALOT and I don't know what ARB stands for??? Im assuming it is an anti viral combination of some sort?
  14. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    I have been on anti virals for many many years. They help a lot of people. I cant say they have helped me although my titers have gone down. I was hoping Pridgen was on to something by adding the Celebrex as another way of attacking the virus. It was an interesting philosophy. As far as...
  15. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    Unfortunately I don't see any good results in the FB group or on any forums other than Grandma. People would be everywhere sharing their remission or any kind of marked improvement. I just don't think this is the answer we are hoping for. :(
  16. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    I am not on the protocol but following a group that is. So far I have not seen anyone getting better.
  17. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    Sorry this is so late. The correct email is tsasurgery@gmail.com.
  18. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    Do you think it is the Celebrex that is helping your pain that is making you feel better? I would have your Doctor check with Dr. Pridgen. I think that Famvir at a dose that I took for several years is recommended. From what I gather from others you are on the dose Dr. Pridgen recommends...
  19. m1she11e

    Detection of Mycotoxins in Patients with CFS

    I don't know if that would mean it is working better for you than it is for me?? Is that a good sign? I have had NOTHING that bad as far as sinus symptoms. I also wonder if maybe it would help to take an antihistamine while doing the protocol. I started doing that and I think it is one...
  20. m1she11e

    Detection of Mycotoxins in Patients with CFS

    I don't find the Ampho B to burn nearly as bad any more. I don't get the crazy running nose all day. I do get a really bad headache but it is less too. I get very very tired from it. No bleeding at all. I was gonna go to every other day but I chickened out. Im still at every 3rd day. It...
  21. m1she11e

    Gingergrrl's Journey with Famvir

    I had just recently heard that Dr. Klimas said it will eradicate EBV in a year. I tend to trust her opinion!
  22. m1she11e

    Gingergrrl's Journey with Famvir

    I knocked down HHV6 and CMV on Famvir and kept it down with Acyclovir. Most recent my EBV has shot up although it was only been high once before. It then came down many years ago without any treatment. Now 15 years later it has traded places for the virus in the lead. Its odd how these...
  23. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    That's great that your are feeling better. What is your dosage of both Valtrex and Celebrex?
  24. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    He for sure is recommending Famvir as his first choice.
  25. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    This is the new website. http://innovativemedconcepts.com
  26. m1she11e

    Dr. Pridgen's 9 different cocktail mix patents & research under Dr. Carol Duffy name

    Okay, so this whole thing is not hush hush at all. I am on a private facebook group of people that have either emailed or spoken to Pridgen in person. One member said he answered the phone when they called after hours. Who knew?? Here I thought it was a big secret. The secret formula is...
  27. m1she11e

    Detection of Mycotoxins in Patients with CFS

    Just an update... Im about 3 weeks into the protocol but have been doing it every 3 days after feeling too wiped out at every day. Like clockwork I feel horrible the night I take the Amph B and the whole next day. I start to feel better the day after that and then I wake feeling almost...
  28. m1she11e

    Detection of Mycotoxins in Patients with CFS

    So is the Muperecin part of the protocol for everyone?
  29. m1she11e

    Detection of Mycotoxins in Patients with CFS

    I agree it is a HUGE DEAL! I lived it and it was horrible!! This is where all this mold testing and clean environment is so frustrating! I am told that an ERMI is the standard and then someone else says to test a different way and that it is the only reliable test. If money were no object I...
  30. m1she11e

    Detection of Mycotoxins in Patients with CFS

    No, I am not sure of that and don't have the money to run the tests. I have been sick for over 30 years though. Started in California, remained the same in Montana, same in North Carolina and then in Florida. It only got worse when I move to a new condo complex about 4 years ago. That is...