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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    After getting better I contracted Influenza Virus - bedridden again

    My fatigue and hypersensitivity got a lot better within the last years, my pain not. It just happened, i didnt try fancy meds anymore. Now I got fever, chills and extreme fatigue again. It feels like then, but this time a md tested me positive for influenza b. What can i do to get rid of it...
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    vitamin d intolerant and other problems, would appreciate any advice

    I too do not tolerate Vitamin D anymore, not even 500 IU. Some time ago 3000 IU were no problem. Sunlight is fine, so it must indeed be a reaction of the digestive system. Im thinking about a topical supplementaion (if there is any).
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    What has helped best against your leaky oversensitive gut?

    I still havent found a specialist for leaky gut. So please tell me what helped you so I can try it. Glutamine? Glucosamine? Arginin? Butyric Acid? Slippery Elm? Lecithin?
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    Restoration of impaired intestinal barrier function by the hydrolysed casein diet contributes to the

    Which butyrate product do you take and how much?
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    Did KDM's treatment help you or did you get worse?

    Think of seeing him, but just read from somebody who got really worse from his treatment. Would like to hear from other patients: Did KDM help you?
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    calprotectin test?

    Yeah, mine was highly elevated. i was so glad i could prove I have an inflammation in my gut without doing a colonoscopy. But i still dont know where it comes from or how to treat it.Sorry, cant tell you who offers this test, but its a simple stool test.
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    Anyone else with medicine intolerance but no problems with food?

    Hi ukxmrv, what problems do you have with the pills you mentioned? I get neuro symptoms like nerve pain, tingling, brain fog and not being able to move my arms from every pill I swallow - vitamins, antibiotics, immunemodulators, herbs.
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    Anyone else with medicine intolerance but no problems with food?

    I am still clueless why I cannot take any medical pill anymore (get new neuro symptoms from it) but have no problems at all with food. Anyone else with a general medicine intolerance?
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    Antibiotics cause these symptoms....why?

    How is your gut? I get also symptoms from abx and think its due to a leaky gut.
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    Severe Leaky Gut w/food-supplement sensitivities. Please help!

    I also have leaky-gut-like senaitivities to supplements and meds. However i seem to tolerate most food (exvept chili). Vit C and psyllium husk helps a little bit, but still dont tolerate any oral medicine and dont know why.
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    How can I heal my gut when it overreacts to every substance?

    Its funny you mention that. just saw a tv documentary about positive health effects of this. a lot of people who did it turned 100 was said and scientists talkes about worms who die earlier when they eat more.
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    symptoms disappear when I get my period or a Cold

    maybe when we have a flu its the cytokines that start the immune reaction which help us. maybe giving cytokines (like interferon) could help us? anyone tried it?
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    How can I heal my gut when it overreacts to every substance?

    Fredd, i did a special test for b12 called methylmalonicacid and it was as normal as the usual b12 test. But i dont know what mb12 is? Is it kind of the same? I would like to know if im deficient before i start supplementing. Shellbell, what did your practioner do to make you feel so much better?
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    symptoms disappear when I get my period or a Cold

    dont think we feel better with flu because of cortisol. cortisol suppresses immune function. i think we are better because immune function is high with flu. but its just a theory.
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    symptoms disappear when I get my period or a Cold

    Yeah, i love flu cos it stops my pain. For me this is sign of a latent infection and a suppressed immune system. Will ask my doc about it. Unfortunately i dont get a flu anymore. So how can we use this knowledge and get our body to start a flu-reaction? With ivig? Cant say anything about...
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    Read these symnptoms - maybe you can identify some of your infections

    It was neither my purpose to trash your thread nor to discourage anybody. Im really sorry if I did. I just wanted to point out how complex diagnosing infections is. I also dont want to live with this sh**. Thats why i am here. An immune system fighting against ANY infection causes fatigue...
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    why are tests for inflammation so often negative in cfs/me?

    i think we cant find inflammation in our blood with markers like crp or wbc because the bugs (which i think most of us have) hide from being detected by our immune system. and as long as it does not find the bugs it cant stimulate inflammation.
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    Appointment with KDM! any advice?

    So has KDM put you on an antibiotic or what is the treatment?
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    Prednisone for sore throat and CFS

    I wouldnt take it. The dose isnt that low. It can activate the infection which causes your sore throat.
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    Appointment with KDM! any advice?

    I would love to read update when the treatment progresses
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    Hypersentive to supplements

    i also got hypersensitive after trying supplements and (like you) an antibiotic. unfortunately i also still havent found the ideal therapy to get rid of it, but im trying a diet against leaky gut.
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    Read these symnptoms - maybe you can identify some of your infections

    You would need to test the most common 100 infections i think. Thats pricey and you need a motivated doctors who is willing and able to analyse the results. Then antibody testing is generally notorious unreliably from my point of you. If your immune system is impaired or a germ knows to hide...
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    no lactobacilius instomach but can't take it...and other gut issues - any suggestions

    Also cant take probiotics. I declined after taking them. Before my gut wasnt a big issue but since taking probiotocs i cant even drink kefir anymor cos i get blood on toilet paper and more inflammation. Maybe the gut is still too leaky for probiotics?
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    Hypersentive to supplements

    I have a similar problem and started a thread on it in the gut-section weeks ago. I think it could be because of a leaky gut. Do you have gut problems?
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    Appointment with KDM! any advice?

    4k is 4000$? (Sorry if this a stupid question...) Thats indeed a lot. Has anybody been treated by him who overreacts to every medicine and cant take anything. If he can fix this i would love to spend the money. But if he prescribes stuff my gut doesnt tolerate id rather spend the money in a...
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    Read these symnptoms - maybe you can identify some of your infections

    Nice overview. Since its almost impossible to find out which infections we have i think immune modulators are a better choice.
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    Appointment with KDM! any advice?

    How much is consulting KDM including lab tests? How long do you have to wait for the first appointement? Do the people who have been at his office think it was worth it?
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    Boosting testosterone for ME symptom alleviation?

    Actually a very reputable infectious disease doc suggested i try 25 mg testosterone cream although my levels are fine. But i havent tried it yet.
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    How can I heal my gut when it overreacts to every substance?

    Great answers. Ive read them all for the third time now. Im doing a stool analysis for alpa1-antitrypsin, calprotectin and so on now. l also started to read John Paganos book on leaky gut and see what his diet will do. Unfortunately he doesnt agree with your recommendation for pizza... :-)...
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    Tagamet (cimetidine) for CFIDS (worked for me)

    So in your case it wasnt cfs but withdrawal symptoms? Never read about sth like this. Hope you'll be able to work again soon.