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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Cleveland Clinic & XMRV & CFS doctors?

    (This is more of my rant at the clinic for misdiagnosing me. It isn't really useful info.) If there is a doctor at the clinic who is up on CFS, then I have some issues with the five doctors I saw there who did not suggest I see him or her when I told them I thought I had CFS. I grew up in...
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    Acupuncture and lightning bolts

    Thanks Kim for the info! I thought it might be something like that. Glad that it doesn't do much harm.
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    Acupuncture and lightning bolts

    Ah, yes! The lightning bolts. I had one of those up and down my right leg during my very first session. I was pretty scared about it, especially since she told me it wouldn't hurt. It was a long time before I let her put a needle in that point again. I felt the lightning there one other...