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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. K

    Stem Cells

    Hey j, sorry. This is Dipic (Ben). You may recognize this old name too. :) I did get your message there are a couple problems - first being that the past couple days have been extremely rough (moreso than usual) for me. Family issues came up and there was a lot of emotional upset. It's...
  2. K

    War at Wikipedia

    XMRV is mentioned on the main page. I hope everyone reads the talk page and article before we get any knee-jerk reactions. I've been following both (article and talk page) for quite some time and I can tell you that a number of the contributing editors are ME/CFS patients themselves. That said...
  3. K

    Childhood Physical Abuse Linked To Arthritis, Study Finds

    Is there a link to the full study? I would like to know how many people were included this. And I wonder... even if the prevelance of osteoarthritis is indeed higher in those who were abused as a child, how could this info be put to good practical use? "Parents: don't abuse your kids - they may...
  4. K

    emergency report from China

    I remember someone posting a youtube clip on another forum about an "HIV-like virus spreading through China". What the clip showed was a news agency (I forget which one) who was actually describing the spread of an unknown virus and the symptoms that you, Hanchuchu, have described. I've checked...
  5. K

    Teitelbaum's post on Psychology Today (and my response)

    Wow, my respect for Dr.T has dropped considerably over the past few weeks (though to be fair, I was previously indifferent about the guy, at best). Good responses Wayne and Eric - both well said.
  6. K

    xmrv needs 4 tests (Nov 09)

    Also note that Dr.Bell says the following at the end of the newsletter about testing:
  7. K

    DR. Bell's November news letter on XMRV

    I think my old man is going to attend his lecture (since we are only about 30 mins away). :)
  8. K

    DR. Bell's November news letter on XMRV

    Ah, I was just about to post this. Beat me to it. :p It's a very interesting read.
  9. K

    XMRV not a mouse contaminent; new human retrovirus; not prostrate XMRV

    I apologize if the thread title seems misleading. I actually wanted it to read "Dan Peterson: XMRV not a mouse contaminent; new human... etc." but it wouldn't fit. These aren't necessarily my views as I wasn't even entirely sure what to make of these statements myself, and of course the quote...
  10. K

    XMRV not a mouse contaminent; new human retrovirus; not prostrate XMRV

    Ah, excellent! I vaguely remembered there being some way to do that but heck if I could remember how. Thanks for the tip. And a nice breakdown, Koan. I may have to refer back to this thread in the future. :p
  11. K

    XMRV not a mouse contaminent; new human retrovirus; not prostrate XMRV

    Sorry if this has already been mentioned or discussed in some capacity or another but I really found this quite interesting. I'm referring to a point in Dr. Peterson's presentation at the CFSAC meeting in which he said: Also note that the accompanying powerpoint slide lists the following...
  12. K

    Namechange 2009

    I prefer to say it like you would with HIV by pronouncing each letter (H-I-V). X-A-N-D sounds the best imo.
  13. K

    FLASH: CDC/NIH using Wichita, Georgia samples

    No offense but I think you are blowing things way out of proportion, not to mention being a bit presumptive (to say the least) about Ms.Jones' intentions. She was simply following the rules which say the public who signed up to speak should be allowed to do so. In actuality, she was doing the...
  14. K

    actions on CDC empirical definition

    My faith in online petitions actually achieving anything even marginally significant is nill but I signed it none the less. It can't hurt, anyway.
  15. K

    Famous (and sort of famous) ME/CFS sufferers

    Never heard of any of these folks tbh. The only famous people I know who have/had ME/CFS is Cher and the author of Sea Bisquit. I don't wish this illness on anyone... but at the same time I can't help fantisize what it would be like if more famous people had the illness... especially policy...
  16. K

    Lightening Process - Another View

    Just wanted to post this video created by Ciaran Farrel about the Lightening Process. http://www.youtube.com/watch?v=SFGcKmdOVO0 Only the first part has been uploaded. I will edit in the links of any further parts as they become available. I don't know a lot about this man other than the fact...
  17. K

    Are You a Victim of Doctor-Caused PTSD

    I picked the last option. The only problem I ever had worth mentioning was with my first PCP (I just switched to him from a pediatric as I had just turned 18) who insisted I had depression. I knew otherwise but gave up trying to convince him after the first appointment. Why waste mine or his...
  18. K

    ALERT: Teitelbaum to be on DR OZ SHOW this FRIDAY!

    Nope. Apparently this was filmed before the XMRV discovery (says so in the OP.) He's going to talk about his all new super awesome "SHINE Protocol" to help those with "chronic fatigue" though. :rolleyes: Yeah, no kidding.
  19. K

    Peterson Talking for 1 hour at CFSAC Meeting on XMRV

    Hey, it's a start. It's approx. 1.6 million more research funding that we ever could have hoped for before the WPI's discovery.
  20. K

    Details of XMRV Study Available

    Strange, I actually got it to work by enabling cookies on my browser for the page. Thanks though, cfs'98. :)
  21. K

    Details of XMRV Study Available

    When I try to download the PDF it takes me to a page that says: "Subscribe/Join AAAS or Buy Access to This Article to View Full Text. The content you requested requires a AAAS member subscription to this site or Science Pay per Article purchase. If you already have a user name and password...
  22. K

    NYT 12OCT09: Is a Virus the Cause of CFS?

    Major props to the NYT for writing such a balanced piece.
  23. K

    WPI Finds High Levels of Retrovirus in ME/CFS Patients

    Please don't link to infowars (or prison planet or any other conspiracy nut site) if you wish to have it's contents taken seriously.
  24. K

    Meeting the Doctor

    Jen: "Kamina no offense but, *YAWN*. I'm really really interested in Mike's story and the 3 patients, and not interested in your doubts so I'll leave it be. Good luck." Thanks, but my intentions weren't exactly to entertain you. Please skip over my posts if you don't care to read them. At any...
  25. K

    Meeting the Doctor

    "The opposite is true. He's driven by passion, mostly from the horror of his own experience and seeing that of others. He has a mission. Without it he wouldn't go to all this trouble. Rhetoric often sways others. He's in the right place and doing exactly the right thing. Let him be." Hi Jen. Do...
  26. K

    Meeting the Doctor

    To Mike: "Hi Kamina...Theres plenty of scientific evidence for Valcyte and Interferon..why don't you try those." Actually, scientific studies have been largely inconclusive in regards to these two being used to treat CFS, but that's besides the point. The only treatment I've come here to...
  27. K

    Meeting the Doctor

    Can't wait to see some scientific evidence that these treatments work! How exciting will that be!