• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. S

    can it still be cfs/me if i can do sports

    I think it can definitely be ME/CFS. I feel better during exercise or immediately after it, but it doesn't last long (it lasts for as long as your body is 'heated up', 15-20mins). Sometimes it 'taxes' me after a day or a few.
  2. S

    tumor necrosis factor inhibitors

    I think you may find this interesting too: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6503587/
  3. S

    Dermatographia anyone?

    I have it, started ~11 years ago, together with the syndrome.
  4. S

    OMF Kynurenine trial

    Used neurorubine (has 100mg/day of B6 together with benfothiamine and B12) for 1.5 month in the past. Also tried just P-5-P 50mg for 2 months. What's your experience with it? Regarding BB536 - reviews like this (and medical ones, about immune system modulation) made me interested into it.
  5. S

    OMF Kynurenine trial

    Had no luck with it :/
  6. S

    OMF Kynurenine trial

    Yes, but we don't know if it modules it, or simply decreases in all the cases (even if it's low). The more interesting part to me was decreased kynurenine to tryptophan ratio there, of course we don't know why/how it happens there too. I just wanted to share the finding.
  7. S

    OMF Kynurenine trial

    I was searching for information on Bifidobacterium longum BB536 (ordered it a week ago), and found this on the internet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC4965519/. See this part: Daily administration of BB536 was found .. to decrease the resting level of plasma corticosterone and...
  8. S

    Microbiome Modifies Immune System Behaviour

    Have you seen https://www.sciencedirect.com/science/article/pii/S1756464619300684 ? I've purchased some https://www.iherb.com/pr/quality-of-life-labs-probiopure-125-mg-30-veggie-caps/43965 to see if it has any effect :)
  9. S

    Terpenes = reduced PEM

    I've also found these on the topic (D-Limonene): https://www.spandidos-publications.com/10.3892/mmr.2017.6241 https://www.researchgate.net/figure/d-Limonene-effects-on-TNF-a-levels-The-elevated-mean-serum-TNF-a-levels-from-rats-with_fig3_236691271
  10. S

    Terpenes = reduced PEM

    Have you seen https://pubmed.ncbi.nlm.nih.gov/28673718/ ?
  11. S

    metformin

    Maybe? Did you read https://www.healthrising.org/blog/2019/05/11/fibromyalgia-diabetes-metformin-chronic-fatigue/ ?
  12. S

    Questions on CellTrend result

    Hm.. if you use any social networks or programs like skype, may you let me know your nickname there? It seems it might be the only way to get in contact right now :)
  13. S

    Questions on CellTrend result

    @Gingergrrl: I seem to be unable to PM you yet (limitations of new account?), may you drop me a message? Thank you! @Dmitri: I am not sure, I will read some articles about the types of it.
  14. S

    CFS, POTS, OH: treatment for adrenergic & muscarinic receptor antibodies

    Please open 1st page of this thread, the doctor is 2nd in the list of doctors (first post).
  15. S

    CFS, POTS, OH: treatment for adrenergic & muscarinic receptor antibodies

    I've read it, a great article! :) Thanks.
  16. S

    CFS, POTS, OH: treatment for adrenergic & muscarinic receptor antibodies

    I didn't say I don't trust the results :) It was just strange that a doctor mentioned in first post by Lolinda made such a reply, so, I wanted to share it with you. As I came back positive for 11/11 of the autoantibodies, I've tried to contact the doctors mentioned in the initial post of this...
  17. S

    CFS, POTS, OH: treatment for adrenergic & muscarinic receptor antibodies

    I'm not sure if it's a "red flag". I've tried to contact one doctor from the list. His answer was: Just letting you know :)
  18. S

    IgM when relapsing/reactivating Lyme&co?

    Attaching. Notes: 1) I couldn't have IgM positive for B19 and Lyme :) No way I've caught them recently. 2) Regular ELISA and WB testing for Lyme is negative (I know that sensitivity is not so high for them). 3) I live in EU, and I've never travelled to zones where I could catch "Ehrlichia...
  19. S

    IgM when relapsing/reactivating Lyme&co?

    I agree with the opinion above. I've just got the results from Armin Labs on Tickplex - I don't really trust them :)
  20. S

    Questions on CellTrend result

    Hello, I'm not a typical CFS patient, because I suffer from Fibromyalgia and some orthostatic intolerance. However, as you probably know, conditions seem to overlap each other, so, I have some symptoms of CFS as well. I've been tested for auto-antibodies at CellTrend, and I've go 10/11 results...