• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    Is there an online database of ME patients?

    e. g. for ME patients: https://whatcures.me-aktuell.de/web/en Demo users page: https://whatcures.me-aktuell.de/web/en/user-overview/index/demo It is Open Source: https://gitlab.com/meaktuell/whatcures for all diseases (closed source): e. g. https://www.patientslikeme.com/ read...
  2. J

    Noise cancelling headphones - great for those with a sound sensitivity; horrible for those with a significant other. ;)

    Can you please test without music, only noise cancelling, e. g. with a running vacuum cleaner, how good reduces the Sony the noice?
  3. J

    Endogenous Viruses

    https://forums.phoenixrising.me/threads/hervs-of-the-h-k-and-w-types-are-overexpressed-in-immune-cells-of-fm-patients-with-or-without-comorbid-me-cfs.79315/
  4. J

    „HERVs of the H, K and W types are overexpressed in immune cells of FM patients with or without comorbid ME/CFS“

    https://www.mdpi.com/1422-0067/21/4/1366/htm Int. J. Mol. Sci. 2020, 21(4), 1366; https://doi.org/10.3390/ijms21041366 Article Activation of Transposable Elements in Immune Cells of Fibromyalgia Patients by Tamara Ovejero 1,Océane Sadones 2,Teresa Sánchez-Fito 3,Eloy Almenar-Pérez 3,José Andrés...
  5. J

    #MEAwarenessHour on twitter

    bump Please support the #meawarenesshour! We need more attention, we can achieve that through the Twitter trends. If you don't have a twitter account simple register with your mobile number!
  6. J

    Did you know animals can get Me/CFS bad,?

    Very interesting: http://www.priory.com/vet/cfsdogs.htm
  7. J

    Gut bad again = m.e symptoms worse again

    Read this thread for example: https://forums.phoenixrising.me/threads/fixing-leaky-gut-helps-me-cfs-and-sometimes-achieves-full-remission.13463/
  8. J

    Flu shots for ME/CFS people

    Be aware that a visit to a doctor is already a strong infection risk for flu-like diseases. Well-child visits linked to more than 700,000 subsequent flu-like illnesses https://www.sciencedaily.com/releases/2014/02/140212144611.htm
  9. J

    Rituximab Phase III - Negative result

    If they halved the dose, I'm not surprised that the result of the study was negative. Does anyone know what blood values (CD20 etc.) you need to have in order for rituximab to help?
  10. J

    Article/Study: „Knocking out 1 protein may cure the common cold“

    Article: „Knocking out 1 protein may cure the common cold“ https://www.futurity.org/common-cold-viruses-2162532-2/ Study: Enterovirus pathogenesis requires the host methyltransferase SETD3, Nature Microbiology, Page 2058-5276, https://doi.org/10.1038/s41564-019-0551-1
  11. J

    Enterovirus Infection Linked to Acute Flaccid Myelitis

  12. J

    Intestinal development and homeostasis require activation and apoptosis of diet-reactive T cells

    Intestinal development and homeostasis require activation and apoptosis of diet-reactive T cells Study: https://www.jci.org/articles/view/98929 Alexander Visekruna,1 Sabrina Hartmann,1 Yasmina Rodriguez Sillke,2 Rainer Glauben,2...
  13. J

    Epstein-Barr Virus Induced Gene-2 Upregulation Identifies a Particular Subtype of ME/CFS

    Thread about the same study: EBV subtype 'gene' found in ME/CFS Dr. Chia seems to prescribe Cimetidine: https://www.healthrising.org/blog/2016/08/12/chronic-fatigue-syndrome-fibromyalgia-recovery-lerner/ I also remember articles about cimetidine and EBV by Dr. Jay Goldstein. Med Hypotheses...
  14. J

    ScienceDaily: "Cytomegaloviruses deploy a novel stealth strategy to subvert immune surveillance"

    PLOS. (2019, April 4). Cytomegaloviruses deploy a novel stealth strategy to subvert immune surveillance. ScienceDaily. Retrieved April 6, 2019 from www.sciencedaily.com/releases/2019/04/190404143707.htm Study: Martínez-Vicente P, Farré D, Sánchez C, Alcamí A, Engel P, et al. (2019) Subversion...
  15. J

    Bouquet et al 2019 Analysis of ME/CFS patients experiencing post-exertional malaise following cardiopulmonary exercise testing.

    Anthony L. Komaroff, MD: "Hot Areas in ME/CFS Research: 2018"
  16. J

    EBV subtype 'gene' found in ME/CFS

    Does anyone know which EBI2 antagonists are in development, which are already available or which other drugs could be used? I only found Cimetidine, it inhibits Th1 suppressor cells as a side effect.
  17. J

    My first visit to see Dr Klimas and team (Success in the End)

    Parvo B19? This study shows successful IVIG treatment in 3 cases. This study says that natural killer cell cytotoxicity is decreased in the ME patients.
  18. J

    OMF's $9 million banner year, 2018 highlights

    @Ben H Where can I find the answers to this questions? https://www.omf.ngo/symposium-question/
  19. J

    Studies

    Hello Martin, maybe this list of most significant studies helps you: https://drive.google.com/file/d/0B2-jgrpFGr11ai1jY1UtZ0dNaEU/view http://meversuscfs.blogspot.com/2016/12/patientenverfugung-und.html
  20. J

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    Ms Voss started with only 1/8 Viread (Tenofovir) capsule. ELLKAAYE in www.symptome.ch writes to start with low dose and it can take a long time until you reach full dose.