• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. J

    muscle fatigue and lactic acid (lactates)

    Thank you for this clear summary, pattismith. I came across this thread as I was looking for something on Ca-actin binding and calcium. Recently I read something about research into metabolites but didn't understand it. This seems to be an exciting field of research. As I'm not a scienist I...
  2. J

    Ideas for improving or coping with neck pain?

    No I didn't need to have a contrast dye for the MRI. I was referred for this by a specialist physiotherapist (who took advice from a consultant) because I was getting pain down my arm and numbess in my hands. They wanted to see how bad the stenosis was in case I needed surgery of some sort. (The...
  3. J

    Suddenly sleep quality has become unbearably worse

    Hello, I take medication for sleep and have done for a few years. What I have found is that I start getting side effects after a few months. Mild depression, increased sleepiness. When this first happened my GP suggested I changed medication. Without sleep I can't function at half the level I...
  4. J

    Ideas for improving or coping with neck pain?

    Just a thought that if typing is a problem then voice recognition for IT is useful way of avoiding it for searching and using computers. Hope that the TENS helps.
  5. J

    Ideas for improving or coping with neck pain?

    I was diagnosed with cervical stenosis 18 months ago and rather sceptically went on a 'Pain Management' course. One of the useful things about was a technique similar to pacing in combination with what is suggested of body awareness. I find certain activities exacerbat the pain when I perform...
  6. J

    MUS, PPS services and IAPT integration into NHS primary care - what's happening across the UK?

    This is worrying and not just for people with ME. With the continued 'gate keeping' of referrals for medical tests and to specialists by GPs other medical conditions could easily be scooped up within this broad brush label. e.g. asthma, diabetes type 2, cardiac problems, cancer, neuropathy...
  7. J

    100 Years Later: The Lessons of Encephalitis Lethargica

    I've recently joined Phoenix Rising looking for support, but I'm finding the length of discussions and way that they seem to go in different directions very hard to follow. My ME brain fog and limited cognitive ability is sorely challenged. I'm wondering if I have joined the right group? Looking...
  8. J

    100 Years Later: The Lessons of Encephalitis Lethargica

    I think doctors don't like to be in a position of not having the answers and so if they don't know then it must be psychiatric. Multiple sceloris and epilepsy were treated in a similar way. It is now coming to light that many psychiatric illnesses have a biological basis. e.g. anxiety, SAD, some...
  9. J

    Have you ruled out Chiari or Craniocervical Instability (CCI) as a cause of your CFS

    I had cervical stenosis diagnosed last year when I had increased pain and numbness down right arm plus some other balance symptoms. MRI (lying down) showed spiny protusions which I understood could be age related and cervical stenosis but I was told that it wasn't bad enough to operate on. I'm...