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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. X

    I think about to use diagnostic kits to detect some retrovirus e.g. HERV-K

    Well, this Human endogenous retrovirus K is in vaccines which are produced by human fetal cell lines, see https://jvi.asm.org/content/jvi/84/12/6033.full.pdf. So nearly everyone gets this virus injected. And many other (leukosis!) retroviruses too!
  2. X

    Equilibrant/Oxymatrine use: what is seen as autoimmune?

    Thank you for your answer!
  3. X

    Equilibrant/Oxymatrine use: what is seen as autoimmune?

    Is this seen as autoimmune and Equilibrant/Oxymatrine can't be used? Celltrend results: https://forums.phoenixrising.me/threads/severe-ill-case-from-germany.59101/page-2#post-1008617
  4. X

    Study: Annual Vaccination against Influenza Virus Hampers Development of Virus-Specific CD8+ T Cell Immunity in Children

    Another article: 'Serial' flu shots may limit body's ability to fight virus in future: researchers https://www.ctvnews.ca/health/serial-flu-shots-may-limit-body-s-ability-to-fight-virus-in-future-researchers-1.3147903
  5. X

    Study: Annual Vaccination against Influenza Virus Hampers Development of Virus-Specific CD8+ T Cell Immunity in Children

    Can this study result also be transferred to other vaccinations? So these also worsen the immunity against other viruses?
  6. X

    Study: Annual Vaccination against Influenza Virus Hampers Development of Virus-Specific CD8+ T Cell Immunity in Children

    A study shows that the immune system after influenza vaccine is weaker against other viruses than without influenza vaccination. J Virol. 2011 Nov; 85(22): 11995–12000. doi: 10.1128/JVI.05213-11 PMCID: PMC3209321 PMID: 21880755 Annual Vaccination against Influenza Virus Hampers Development of...
  7. X

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    from her twitter account: https://twitter.com/kaethewitthoeft
  8. X

    Parvovirus

    Prof. Jonathan Kerr: => IVIG!
  9. X

    What type of person were you prior to falling ill

    Maybe being overmotivated is already the disease? Faulty metabolism that releases too much of the happiness hormones and you feel well even though you are already giving 110%?
  10. X

    Oxymatrine / Inosine

    Hier kannst du es aus NL bestellen: http://biomedonline01.businesscatalyst.com/white-tiger-range.html Aber Achtung bei Autoimmunität. In irgendeinem Video hat Chia gesagt, dass er das dann nicht gibt.
  11. X

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    Cistus as capsules, tea and lozenge. Example product: https://www.ebay.de/itm/Vivameo-120-CISTUS-INCANUS-Kapseln-a-730-mg-Vegi-Kapseln-Zistrose-Polyphenole/262142365259 @JinZ How long did you take viread last time? If you don't get improvements within 3-4 months then it seems not to work for you.
  12. X

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    Katharina Voss has published a new article in which she discusses in more detail the therapy scheme with Cistus Incanus on the basis of a case report. http://meversuscfs.blogspot.com/2019/08/remission-antiretrovirale-therapie-mit.html
  13. X

    Interferon dosage

    Hello, can somebody tell me the required dosage of interferon against infection with entervirus and what type of interferon? We have a doctor who would prescribe it after a Professor has mentioned that it looks like a enterovirus infection (my brother is complete paralysed). I know it is a...
  14. X

    Anyone here used HIV/AIDS treatment for CFS?

    This gives me a new view: https://forums.phoenixrising.me/index.php?threads/lamivudine-a-generic-hiv-aids-medication-significantly-reduces-age-related-inflammation-in-old-mice.63127/ They say "lamivudine downregulated IFN-I activation and age-associated inflammation".
  15. X

    Royal College of GP training facility (2018)

    They recommend GET and CBT :( (Evidence: The PACE Trial :() http://www.drmyhill.co.uk/wiki/My_Complaint_to_the_GMC_about_the_PACE_authors http://drmyhill.co.uk/wiki/Medical_Abuse_In_ME_Sufferers_(MAIMES) No word about viruses as a cause or at least trigger, no word about the much better...
  16. X

    Need help - severely ill young person

    @Janet Dafoe (Rose49) In our family we have a very severe young person. He can't sit, we can only feed him with fluent food, he doesn't tolerate light and even quiet sound makes him worse. Can someone tell us treatments which could help him even a little bit? In old pictures Whitney's needs...
  17. X

    Treatment with KDM miraculous so far, need help with dysbiosis though

    How is your sekr IgA? If this is low (I guess) then your immune system does not kill the bad pathogens (from meals) in your gut.
  18. X

    Treatment with KDM miraculous so far, need help with dysbiosis though

    Dr. Myhill says that Streptococcus and Prevotella will fall into place if the other microbes are right http://drmyhill.co.uk/wiki/Fermentation_in_the_gut_and_CFS#The_normal_state_of_affairs
  19. X

    List of easy Hand gestures/signals?

    Thank you very much for all your replies! He roughly points his fingers at mouth and so on. He can't think anymore without worsening.
  20. X

    New test uses a single drop of blood to reveal entire history of viral infections

    Any news? Would be very interesting.
  21. X

    List of easy Hand gestures/signals?

    We need help: We need some hand gestures. Talking is almost impossible, only a few croaked words left... Any advice?
  22. X

    Mushrooms as Medicine with Paul Stamets

    Very powerful Reishi: https://www.youtube.com/watch?time_continue=1663&v=7agK0nkiZpA
  23. X

    Blogger Katarina Voss writes a comprehensive article on treating ICC-ME with antiretrovirals

    @Lisa108 Link? I only find this: And that's only DAK insurance and not yet approved. I wouldn't be surprised if we get a big resistance problem when soon more people are doing HIV PrEP... Especially if there are other pathogens against which the antiretroviral drugs could also help.
  24. X

    God Help Us!

    Money isn't a problem: 36 billion $ for HIV a year... https://www.hiv.gov/federal-response/funding/budget
  25. X

    God Help Us!

    Can somebody send them this study? https://www.frontiersin.org/articles/10.3389/fmicb.2018.01955/full
  26. X

    "We can specifically treat several infective CFS/ME subtypes"

    Short article about EBV, Parvovirus B19 and Q-fever and their detection and treatment: https://www.bmj.com/content/362/bmj.k3621/rr-11
  27. X

    Lecture by Dr Kerr to the N.I. Hope 4 ME 30th Oct on Youtube now

    This study shows that Cimetidine also increases IL-2 production (which seems to be low/very low in many patients): https://www.ncbi.nlm.nih.gov/pubmed/3497460
  28. X

    Brain symptoms still declining - Lyme test negative

    Do you have low CD 57 (natural killer cell) count?
  29. X

    Brainstem dysfunction

    In my opinion, studies which still today select patients on the basis of fukuda criteria are not worth reading. But in the introduction they refer to the ICC: https://www.sciencedirect.com/science/article/pii/S2213158218302237?via=ihub#bb0045
  30. X

    Anyone here used HIV/AIDS treatment for CFS?

    @Hip If you like you can search "Cistus" in the text on this page and then click all the following links: http://meversuscfs.blogspot.com/2018/06/arztanfragen-mein-therapieregime-fur.html There you find lot of studies showing other positive effects (against infections of the upper respiratory...