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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Person with Chronic Fatigue doing a research study

    THANKS! I never thought of the spirit aspect. I also like your questions. This is all so helpful!.
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    Person with Chronic Fatigue doing a research study

    Great suggestions. I think scaling might be useful in many areas of this interview. Would you suggest that I consider including people with different levels of severity to compare and contrast their stories?
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    Person with Chronic Fatigue doing a research study

    Thanks for the points. I will definitely incorporate those. After reading your comments, I got me thinking about the brain fog and other symptoms that I experience and overlooked. Thanks again.
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    Person with Chronic Fatigue doing a research study

    Thanks for the suggestion GG. Can you tell me what you see as the primary difference between CFS and CFS/ME/
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    Person with Chronic Fatigue doing a research study

    Hello, I am a researcher and I live with CFS (approximately 12 years). I typically study the relationship between medicine and society and I recently decided to turn my attention to living with CFS and how our lives become reconstructed in some ways and misunderstood in others. So I can use...