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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    A paper I came across that relates to viral vs non-viral CFS subtypes "Significantly more individuals in the viral group (24%) reported cohabitating with individuals having severe fatigue for six months or longer than did members of the non viral group (10%). These findings demonstrate that in...
  2. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    Thank you everyone for your wisdom and knowledge, it's greatly appreciated. I've learned a lot from this thread over the past week. Let see how things play out... Comments from others is always welcomed.
  3. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    @Hip, I've read this study as well. From what I can tell (and please correct me if I am wrong), this study isn't meant to prove that the patient transmitted their ME/CFS to their spouse, rather it is just an indication that there is a certain percentage of spouses that also get ME/CFS. For...
  4. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    @SOC Thanks for the prompt response. I was reading the following article by Dr. Underhill. In some ways, would you agree that referencing ME/CFS as an "infectious disease" is somewhat incorrect then? She goes into detail that there is potentially an infectious agent, which is what we've been...
  5. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    Thank you all for your responses. Your support means a lot to me. @SOC and @Hip, from what I can gather from your posts, ME/CFS ITSELF cannot be transferred. Rather it's the triggering factors (e.g. EBV, enteroviruses or other infections agents) that can be correct? Would it be safe to...
  6. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    @Sean thank you for your input. You mentioned that this was a factor in keeping you out of the mating game early on. Did you end up putting yourself out there and if you did how did things turn out? @daisybell Yes I fully agree that I have to be upfront with her. I just wish I looked into...
  7. M

    Fear of Transmitting ME/CFS to Partner, A Life Long Decision

    Hi everyone, I am not sure if it would be appropriate for this topic to be in this section of the board, but I am in need of some advice for a life long decision. I apologize for the long post but I feel it's required to give some context to my situation. To make a long story short, I first...
  8. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    @ukxmrv do you think you can provide some details as to how your genetic (children?) and non-genetic family member (spouse?) also came on with me/cfs? @Martial I have read studies from Dr. Underhill that a patient isn't usually contagious during the chronic phase of their illness. The...
  9. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    Thanks for your input Mary, Gingergrrl, Jess100 and ahmo. Despite my efforts, it's difficult to come up with a poll to cover an illness that has so many potential factors contributing to it. I was hoping the options I've provided would cover the majority of those with me/cfs. I've added a...
  10. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    100 plus views already, this is great. Thank to those who have responded. If everyone participates in the poll, it would be greatly appreciated. Poll responses remain private.
  11. M

    Poll: Viral vs. Non-Viral Onset and Contagious Relationship

    Hello everyone, recently I've been reading a lot of new/old threads on whether me/cfs is contagious or not. From what I can gather, this is up for debate as no one knows the exact answer. With that said, I am curious as to what the statistics are like for members that had a viral onset (i.e...
  12. M

    Onset associated with Exercise ?

    I definitely fall under this category. You can read all about it in a thread I started a few years back asking a similar question. http://forums.phoenixrising.me/index.php?threads/can-overtraining-syndrome-cause-me-cfs.9075/ To make a long story short, my symptoms started to show up after I...
  13. M

    Dating and Relationship Advice

    A quick update. I told her about my illness and she was willing to accept me for the way I am. However, with dating comes the question of intimacy. Is there any concrete scientific evidence that me/cfs can or cannot be transmitted to a partner sexually if protection was not used? The only...
  14. M

    Is CFS hereditary from the father/male?

    Hello everyone. I was wondering if there is any concrete evidence on whether the male/father is capable of passing on CFS to thier children? Assuming CFS can be passed on, does it lay dormant until it's triggered or are the children born with CFS symptoms? For those that have had children...
  15. M

    Dating and Relationship Advice

    I really have no idea how she would react. The optimistic side of me tries to believe in the good of a human being that she would accept me despite my illness. But at the same time I wouldn't hold a grudge against her if she didn't, that's just the way life works right?
  16. M

    Dating and Relationship Advice

    I am pretty fortunate that my illness would be considered mild. I can maintain a full time desk job and live a pretty normal life as long as I eliminate strenuous activities that pushes me past my limit. I believe in honesty as well, but at the same time I feel I need to keep it to myself...
  17. M

    Dating and Relationship Advice

    Hi everyone, I first got CFS in my mid 20s. Due to CFS, I avoided getting into relationships because of the fear of being a burden to potential partners and not being able to give them the attention and effort that a healthy relationship deserves. Now in my 30s, I've started to come to accept...
  18. M

    Can Overtraining Syndrome cause ME/CFS?

    Alex, can you elaborate on your statement of "What we can say is that some with overtraining syndrome go on to get something that resembles CFS or ME." I am really interested in knowing what the differences between actual CFS and something that resembles CFS. There appears to be a lot of...
  19. M

    Can Overtraining Syndrome cause ME/CFS?

    Hello all, it's been a few years since this thread was made. Just wanted to bump this thread to see if anyone else is in the same boat as me. Basically my onset of CFS followed this path Overtraining/Over Exertion --> Bowel Problems --> Chronic Fatigue Onset. I've been through various internal...
  20. M

    CFS Specialist in Alberta (Edmonton, Red Deer, Calgary)

    Hello everyone, For those in Alberta, do you have any recommendation for specialists or general practitioners that specializes in CFS? I know that Dr. Stein is one but she is no longer taking in anymore patients. I am looking for someone preferably in Edmonton, but is willing to travel to Red...
  21. M

    Fatigue Onset after Calming Down and Relaxing

    Other symptoms would follow the next day, the main one being gut problems (diarrhea), general fatigue and difficulty concentrating. I don't have major any issues when I am sitting or even driving. But I do agree with the adrenaline. It feels like the body is running on adrenaline while I am...
  22. M

    Fatigue Onset after Calming Down and Relaxing

    Hi everyone, just wanted to see if anyone else experiences the onset of fatigue like I do. For my occupation, If need be, I can force myself to be on my feet / walk all day (8 hours with a lunch break in between). During the time when I am on my feet / walking, I don't feel the fatigue...
  23. M

    Can Overtraining Syndrome cause ME/CFS?

    Thanks for everyone's input, I greatly appreciate it. I'll definately let me doctor know of my problems and hopefully they'll be able to have the right tests done on me. I find myself having trouble believing doctors now after all the horror stories of people running into doctors who basically...
  24. M

    Can Overtraining Syndrome cause ME/CFS?

    Can Overtraining Syndrome lead to ME/CFS? Hello everyone, I am new to the board. For the past 3.5 years, I've been struggling with irritable bowel (diarrhea), post exertional malaise and fatigue. My symptoms started to show up after I decided to join a weekend rec hockey league after many...