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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Aspie Lymie

    An Update on the Mestinon Clinical Trial

    Thank you
  2. Aspie Lymie

    An Update on the Mestinon Clinical Trial

    I ordered it, and received it yesterday. Just started the test. The dose is 180mg/day, correct?
  3. Aspie Lymie

    An Update on the Mestinon Clinical Trial

    Thank you. Too bad, here, 3rd doctor said no to Mestinon. They're all afraid of losing their licenses...
  4. Aspie Lymie

    Driscoll Theory Approach

    Any other folks tried Parasym Plus?
  5. Aspie Lymie

    An Update on the Mestinon Clinical Trial

    How did you manage? Did you buy it online?
  6. Aspie Lymie

    An Update on the Mestinon Clinical Trial

    Hi, my Huperzine-A caps have 225µg active compound each. How many caps do I have to take per day to equate the Mestinon treatment?
  7. Aspie Lymie

    Huperzine A

    I just began to try it. At 225µg, I have no effect. I don't know how much I can take. I'm going to take another 225µg pill this evening. What about you? Any effect, at what dose?
  8. Aspie Lymie

    List of ME/CFS Recovery and Improvement Stories

    It could be. Same as cancer : There is liver cancer, kidney cancer, skin cancer.... All treated with different drugs, but they are all cancers.
  9. Aspie Lymie

    Completely eliminated my severe anxiety symptoms with three supplements!

    I take 3g of magnesium citrate daily. I'll look into vitamin B6, to give it a whirl. I've noticed I've been less tired over the past few days. Don't know if this is related to NAG/turmeric/flaxseed oil or not. Will see. Thank you.
  10. Aspie Lymie

    Completely eliminated my severe anxiety symptoms with three supplements!

    Thank you. I'll take a look.
  11. Aspie Lymie

    Completely eliminated my severe anxiety symptoms with three supplements!

    I have taken Jarrow NAG 700mg caps twice daily + 1tb spoon flaxseed oil twice daily + 1G caps turmeric twice daily for a week now... No change in my anxiety, ADHD and OCD symptoms.
  12. Aspie Lymie

    Is there an online database of ME patients?

    Thank you
  13. Aspie Lymie

    Is there an online database of ME patients?

    Hello, Is there an online database of ME patients? I'm searching for a web site where patients could give all their information in terms of symptoms, treatments tested, lab tests, anonymous personal details, etc... This web site could be helpful to draw conclusions, to create stats available to...
  14. Aspie Lymie

    Court dismisses lawsuit by XMRV-CFS researcher

    Judy Mikovits wrote a 2nd book avaible on pre-order: http://plaguethebook.com/plague-of-corruption/
  15. Aspie Lymie

    Disulfiram for persistent forms of Borrelia burgdorferi

    Half a tab is a lot... Dr Kinderlehrer starts his patients on 62.5mg every 3 days and increases every 2 weeks to avoid serious herxes.
  16. Aspie Lymie

    Lufenuron : Has anyone tried this?

    Any more people have tried it since then? Is it efficient?
  17. Aspie Lymie

    Cistus incanus

    To be confirmed, but given the reviews so far, it looks like snake oil to me :moneybag::(
  18. Aspie Lymie

    Cistus incanus

    True [1], [2], [3]. Regarding the antiviral cure with Truvada, cistus incanus tea, and antiviral supplements, I just stopped, as I saw no herx or improvement. I'm going to try a long anti-candida protocol starting this week-end.
  19. Aspie Lymie

    Cistus incanus

    Cool, good luck, @Wally, I'll try it took but with the other things mentioned in Dr Klingdardt's antiretroviral protocol. I'll first do the blood work (At least Nagalase and RANTES). We need to explore this possibility. I'll keep you posted in a few months. Feel free to let un know how your body...
  20. Aspie Lymie

    2018 AutismOne Conference - Dr. Klinghardt re Retroviruses, Antiretrovirals, Lyme, Suramin

    Has anyone had success with Dr Klinghardt protocol?
  21. Aspie Lymie

    Cistus incanus

    Hi guys, any improvement with Dr Klinghardt's antiviral protocol?
  22. Aspie Lymie

    Gathering against chronic Lyme detractors in France

    Hello, On Thursday, we did a demonstration in Nantes, France, against a congress on infectiology where detractors of chronic Lyme gathered. You can find the videos here: https://www.facebook.com/ledroitdeguerir/videos/2089432944635745/...
  23. Aspie Lymie

    XMRV testing: The REDLABS, trading as VIP Dx, WPI connection

    Oh, ok! ;)
  24. Aspie Lymie

    XMRV testing: The REDLABS, trading as VIP Dx, WPI connection

    Red Labs don't offer XMRV tests anymore. Do you know where in Europe we can do the test? Thanks.
  25. Aspie Lymie

    List of Lyme patient societies around the world (and contact information)

    Dear all, I'm a member of a Lyme patient society, and we are drawing up a list of Lyme patient societies around the world along with contact information. The idea is sharing ideas to organize events and defend our common cause on a global scale, not just locally. Additionally, we want to know...