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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. L

    mattress pain

    YES, I had a memory foam mattress, had pain all night. I recently got a Purple mattress. Much better!!!!!!
  2. L

    Anyone here have tooth problems?

    I have lost 4 teeth in the past 3 years. They crack and have to be pulled. I stuggle with a very dry mouth. I don't drink soda,sports drinks, eat candy or other sweets. It is so discouraging.
  3. L

    Does Valtrex work this fast?

    Picante, yes I know about that air hunger. My doctor ordered a oxygen test for me at night. I could stay home for this. Found that over 300 times (!) during the night my oxy level fell to critical. Now I am on oxy during the night and the air hunger is less.
  4. L

    Does Valtrex work this fast?

    oh forgot LOL there is a member on this list that has written extensively about Valcyte his name is zzz, you can put that in Search or go here http://forums.phoenixrising.me/index.php?members/zzz.14571/ Thank you zzz for all your work on this.
  5. L

    Does Valtrex work this fast?

    I posted part of this on another thread I started Valcyte 1800mg At the end of the 4th day I opened my eyes wide and said (out loud) "I feel different". And many of my autonomic symptoms started to improve. After 2 weeks, the dose was reduced to 900mg and I went downhill. Later back up to...
  6. L

    Valcyte sleep issues

    I don't think it is merely a stimulant in the beginning. I have been taking Valcyte for 2+ months. I do feel a great deal more energetic, but I have also been taking dextroamphetamine ( and other stimulants) for years. Without them I would be so bedridden for the past 10 yrs. I know what a...
  7. L

    Valycte Question

    there is another thread on Valcyte with much more info. http://forums.phoenixrising.me/index.php?threads/valcyte-what-to-expect.57538/
  8. L

    Valcyte - what to expect ?

    there is another thread on Valcyte and I posted this there.. I am somewhat different than most. I started Valcyte 1800mg At the end of the 4th day I opened my eyes wide and said (out loud) "I feel different". And many of my autonomic symptoms started to improve. After 2 weeks, the dose was...
  9. L

    Valycte Question

    I am somewhat different than most. I started Valcyte 1800mg At the end of the 4th day I opened my eyes wide and said (out loud) "I feel different". And many of my autonomic symptoms started to improve. After 2 weeks, the dose was reduced to 900mg and I went downhill. Later back up to 1800mg...