• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. S

    Newly Diagnosed and Devastated

    Thank you for all the supportive messages. I feel a massive sense of fear and regret because I didn't quit my job when I was diagnosed. Up until recently I worked as a graphic designer, until I was made redundant. I fear that because I didn't stop working, I have now done permanent damage to my...
  2. S

    Book review of Dr Joe Fitzgibbon's Feeling Tired all the Time

    If this Doctor believes the psychiatric view of CFS, how does he explain the swollen lymphanoids(glands in the neck)/sore throats that often accompany the condition? Surely those things aren't influenced by exercise in any way? Likewise with the pins and needles tingling (which seems to be...
  3. S

    What induced your ME?

    Continuing to work a stressful and demanding job, after to getting a diagnosis of Glandular Fever. So it's likely EBV triggered my CFS.
  4. S

    Prickly feeling throughout body

    I suffer these symptoms too, my doctor said it has something to do with the nerves being affected? I sorry I can't tell you much more, I don't fully understand it myself.
  5. S

    Newly Diagnosed and Devastated

    After being ill with Glandular Fever and failing to recover after nine months, my doctor diagnosed me with Chronic Fatigue Syndrome. I have been told to contact the Irish CFS/ME association to see a specialist. I am absolutely devastated. I don't know how I am supposed to live the rest of my...
  6. S

    Link between Glandular Fever and CFS/ME

    I went to the doctor this morning. It's official, I have Chronic Fatigue Syndrome. There's no hope for me. I'm not going to get better.
  7. S

    Link between Glandular Fever and CFS/ME

    Muscular pain and what I can only describe as a painful pins and needles/burning feeling, mostly in my limbs. Although I have heard that recovery times can vary massively in Glandular Fever patients, the longer I'm ill, the less optimistic I am about making a full recovery. I am well aware that...
  8. S

    Link between Glandular Fever and CFS/ME

    Yes, minor activities leave me absolutely exhausted and in pain.
  9. S

    Link between Glandular Fever and CFS/ME

    I have been ill for the last nine months with Glandular Fever. Originally, I was told I would recover within six months, and foolishly I continued working fulltime even after my diagnosis. Eventually, I lost my job, and thus my dream of being a graphic designer, due to my illness. Since my...