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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. M

    Iodine - The Biggest Result I've Had So Far

    May have something to do with the suspected 'low T3 syndrome' in some CFS patients: https://www.ncbi.nlm.nih.gov/pubmed/29615976 For me, low body temperature and the low energy that goes with it seem to be a sign that something is wrong with thyroid hormones (maybe T3 resistance in tissues...
  2. M

    Life threateningly sick... what can I do?? (aldosterone, adrenaline, food allergies, etc)

    What would abnormalities on the 24-hour fractioned catecholamine test indicate?
  3. M

    B vitamins and blurry vision?

    Hmmmm very interesting, thanks so much for the information. So I should probably try taking glycine then, right?
  4. M

    B vitamins and blurry vision?

    What you're experiencing seems very much the same as what I am. I suspect there is something like the "refeeding syndrome" (that @Freddd describes) going on, and we are missing some other nutrient. Excess B12 for me leads to the blurry vision, floaters, which suggests another nutrient is...
  5. M

    Life threateningly sick... what can I do?? (aldosterone, adrenaline, food allergies, etc)

    Helminthic therapy entails inoculating oneself with helminths, which are basically a kind of parasitic worm. The therapy is based on the hygiene hypothesis/biome depletion theory which essentially states that the absence of certain organisms that we coevolved with is causing abnormal immune...
  6. M

    Life threateningly sick... what can I do?? (aldosterone, adrenaline, food allergies, etc)

    I had some very similar symptoms when I was developing what I'm pretty sure was adrenal insufficiency (maybe autoimmune origin). My cortisol levels were dropping....still within the range of 'normal' (I think they were 9 at the lowest), but I had serious symptoms, like weight loss, nerve pain...
  7. M

    Do people recover?

    do you know what the regimen was?
  8. M

    B vitamins and blurry vision?

    Alright I'll try that
  9. M

    B vitamins and blurry vision?

    I have been experimenting with @Freddd 's methylation protocol, or some approximation of it, for many months now. I am having a hard time striking the right balance. At first I had excellent results with just hydroxyB12, but then it became clear I was low on other b vitamins. I then had positive...
  10. M

    Medication

    I've been wondering about Zach Bush's product as well. Hard to tell whether it might work, but Dr Bush seems like a very smart guy
  11. M

    B-12 - The Hidden Story

    Hi Freddd, Thanks so much for your response. Do you recommend jumping to a high methylfolate dose of something like 4mg, since small amounts cause symptoms? One other question: Is taking SAM-e a good test to see whether someone even needs methylation support in the first place?
  12. M

    B-12 - The Hidden Story

    @Freddd I'm wondering if you can help me. I began taking hydroxycobalamin months ago and it initially had a profoundly positive effect. It felt like my muscles were turned on for the first time in a few years, and I could finally do some very basic exercise. However, it didn't last. My initial...