• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. Lou Corsius

    How fatigue researchers reason away nil results and negative findings regarding CBT in CFS and QFS.

    https://corsius.wordpress.com/2019/02/16/how-fatigue-researchers-reason-away-zero-results-and-negative-findings-regarding-cbt-in-cfs-and-qfs/
  2. Lou Corsius

    iCBT neither efficacious nor safe, our comment in BJP

    https://www.cambridge.org/core/journals/the-british-journal-of-psychiatry/article/cognitivebehavioural-therapy-for-chronic-fatigue-syndrome-neither-efficacious-nor-safe/C8B85E1E18395A44E4535281167FD413
  3. Lou Corsius

    Bad News for Denmark: ME patients, say new guideline, to be made well by physical training

    https://corsius.wordpress.com/2018/06/21/to-the-danish-health-authorities-government/ to the Danish minister of Health to Søren Brostrøm @SSTbrostrom Direktør for Sundhedsstyrelsen (Danish Health Authority) sst@sst.dk to the Danish Health Safety Institute stps@stps.dk
  4. Lou Corsius

    How fatigue scientists influenced the image of a disease

    https://corsius.wordpress.com/2018/06/16/how-fatigue-scientists-have-been-influencing-the-image-of-a-disease/
  5. Lou Corsius

    My conversation on twitter with cfs research and prof. Michael Sharpe

    it is, as I replyed, an irrelevant question. He was trying to divert our attention from the fact that these studies are severely flawed. All five of them. Anyone can see that.
  6. Lou Corsius

    My conversation on twitter with cfs research and prof. Michael Sharpe

    https://corsius.wordpress.com/2018/06/09/conversation-on-twitter-with-cfs-research-and-prof-michael-sharpe/
  7. Lou Corsius

    One Title, Two Mistakes

    https://corsius.wordpress.com/2018/04/08/een-titel-twee-missers/ English translation at the bottom of the article.
  8. Lou Corsius

    On Monday March 19 public presentation of ME report Dutch Health Council

    Prof Knoop Trouw (Dutch newspaper) 24 March 2018: between your ears is your body! What does this anatomical insight tell us about his research?
  9. Lou Corsius

    Desperate Dutch scientists

    https://corsius.wordpress.com/2018/03/28/desperate-scientists/
  10. Lou Corsius

    On Monday March 19 public presentation of ME report Dutch Health Council

    On Monday March 19 2018 the long awaited report of the Dutch Health Council will be made public. The national news broadcast organisation (NOS) will pay attention to this fact. We hope there will be an important breakthrough, Our hope is that they will acknowledge ME is a physical disease. In...
  11. Lou Corsius

    Dutch television program: link to program and transcript in English

    https://corsius.wordpress.com/2018/...-ntr-february-22-2018-inexplicably-overtired/ https://www.ntr.nl/Focus/287/detail/Onverklaarbaar-oververmoeid/VPWON_1283735#content TV program and English transcript
  12. Lou Corsius

    analysis of five Dutch hallmark studies

    An analysis of Dutch hallmark studies confirms the outcome of the PACE trial: cognitive behaviour therapy with a graded activity protocol is not effective for chronic fatigue syndrome and Myalgic Encephalomyelitis. Gen Med Open. 2017. 1(3): 1-12. doi: 10.15761/GMO.1000117. Twisk FNM, Corsius...
  13. Lou Corsius

    Turning point or point of no return

    https://corsius.wordpress.com/2017/11/18/me-science-on-a-turning-point/ ME science on a turning point On Wednesday November 15th mr. A. Rutte member of Parliament send me an answer following my request to react. I very much appreciate his answer and his attention to the cause of ME. In turn I...
  14. Lou Corsius

    Prof James Coyne exposing Dutch Health Council misinforming Dutch Parliament

    https://www.coyneoftherealm.com/blogs/news/no-seats-on-the-us-institute-of-medicine-advisory-commitees-are-not-for-sale-despite-what-the-dutch-parliament-was-told Following a citizens initiative the Dutch Parliament asked theDutch Health Council https://www.gezondheidsraad.nl/en in 2015 to...
  15. Lou Corsius

    Professor James Coyne commenting on poor British and Dutch fatigue research

    https://www.medischcontact.nl/opinie/blogs-columns/blog/ongemakkelijke-onwaarheden.htm Both rulings to be found below Voetnoot
  16. Lou Corsius

    Professor James Coyne commenting on poor British and Dutch fatigue research

    Part 2, Amsterdam, october 13 2017
  17. Lou Corsius

    Professor James Coyne commenting on poor British and Dutch fatigue research

    Part 1. Amsterdam, october 13, 2017
  18. Lou Corsius

    Dutch fatigue scientists getting worried

    The professor believes in fairy tales Professor Gijs Bleijenberg stated in the Reformatorisch Dagblad October 2nd that cognitive behavioral therapy and graded exercise therapy are effective in CFS: chronic fatigue syndrome. He reacted because recent further analysis showed that the biggest...
  19. Lou Corsius

    Dutch fatigue scientists getting worried

    Just after an impressive interview with Mark Vink had been published in De Volkskrant (one of our national newspapers) prof. Gijs Bleijenberg published a mailing to the press stating the following: Cognitive behavioural therapy is still an effective treatment, even the preferential treatment...
  20. Lou Corsius

    Change the committee and stick to your assignment

    They have been working together with their UK colleagues more than once. In Dutch: ze spelen elkaar de bal toe. They help each other. The Dutch expression has an unpleasant connotation.
  21. Lou Corsius

    Change the committee and stick to your assignment

    Yes it is. The same person who supports Ester Crawley introducing FITNET in the UK
  22. Lou Corsius

    Change the committee and stick to your assignment

    My own brother is a physician and even he is reluctant to accept this is actually a physical disease. First give me a diagnostic test he said. Physicians and other healthcare providers have been indoctrinated succesfully. Even I believed the bps model to be accurate in the beginning. The thing...
  23. Lou Corsius

    Change the committee and stick to your assignment

    Hi, it is a good suggestion but almost everything David wrote has been translated. It can be found on me-gids.net. Apart from that most Dutch people do understand English very well, especially those who have studied at university because most of the literature is in English. Most important...
  24. Lou Corsius

    Change the committee and stick to your assignment

    One of the members of the advisory committe was also author of the editorial that hailed the PACEtrial in 2011 in The Lancet. So you can imagine what his point of view is. The CBT GET lobby is rather powerful overhere. They are represented on all important levels. There is much at stake such as...
  25. Lou Corsius

    Change the committee and stick to your assignment

    The president of the Health Council of the Netherlands accepted a petition on september 18. More than 10.000 people signed this petion to change the committee and stick to the assignment to advise on ME. They changed it to MECFS conflating the diagnoses just like all the severely flawed cbt/get...
  26. Lou Corsius

    Dutch Health Council

    The guy next to him is prof dr Hans Severens, vice president of the Health Council and co-author of a study concerning the cost-effectiveness of CBT/GET together with Gijs Bleijenberg. He works at the university in Rotterdam and is doing work for NICE (see homepage Health Council...
  27. Lou Corsius

    Dutch Health Council

    That is how it works overhere. The CBT/GET scientists are on all strategic positions.
  28. Lou Corsius

    Dutch Health Council

    Dutch Health Council misinformed parliament in 2016 about IOM. One can buy a membership there. Less scrutiny.
  29. Lou Corsius

    Dutch Health Council

    Dutch Health Council think it is needed to add quality to the IOM report on MECFS
  30. Lou Corsius

    Our daughter being ill for 16 years allready.

    On september 18 a petition was handed over to the Dutch Health Council. Two requests were made: 1. stick to your assignment (= advice on scientific developments about ME) & 2. change the committee (there are a lot of MUPS scientists in the committee) Several letters from patients (also from...