• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of and finding treatments for complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia (FM), long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. juniper

    CFS and applying to university- do i mention it?

    From experience at 4 universities here in Australia, they don't discriminate on applications. Any extra information your provide will only support your application. Also, application forms often have asked if I may require support when studying (this helps the uni plan budgets for support...
  2. juniper

    Anyone feel a little better at night?

    I sure do! I get completely drained by around 3pm and unable to think straight let alone do anything. At this point I usually crash on the couch...until around 8:30-9:00pm when I seem to improve and get my second wind. Then I either crash around 11pm or can't sleep until around 3am. This sure...
  3. juniper

    Poll: How many steps do you take a day?

    Before my current relapse i was almost up to 10,000 steps per day and able to run a few times a week. Now I'm struggling to manage around 5-6,000 steps per day (although my fitbit does count arm movements so it exaggerates the reality of my steps a little - so I'm probably a lot less than...
  4. juniper

    anyone have burning, aching legs?

    I too have pain in my lower legs, starting just above my knes and going all the way to my feet. Majority of pain rests in my knees, calves and ankles, and this is gets worse as the day progresses to the point where it is excruciating in the late afternoon/evening. Interestingly my cfs doc...
  5. juniper

    What job do you have?

    Yes, @JaimeS, teaching is annoyingly draining - but I'm really thankful for the massive pile of leave days I've got tucked up my sleeve! And after over ten years experience I'm also thankful I can teach on auto pilot most of the time ☺
  6. juniper

    What job do you have?

    At the moment I'm quite fortunate to work as a primary school teacher - although most of my day is spent sitting at a desk and i have students bring work to me. I also usually dont move too far from my classroom (less walking and therefore less socialising with colleasgues which is a real...