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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. D

    B2 riboflavin / long term muscle issues now becoming very hard to walk

    Hi yes I had acelcarnatine test and they said I had Glutaric Acideria type ii adult onset. 9 years ago that was. Last week upon repeating the test they now claim I don't have that metabolic disease. And I am back to square 1. I've had every blood test I can think of over the years. But now back...
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    Badly needing help with vitamin B2 and b3

    I have been slowly degenerating since the age of 19 til the age I am now 49. Muscle twitches spasms and slow progressive Weakness of muscles head to toe. I Have seen every type of specialist I can think of. I am low in rivoflavin yet when I take it as a supplement or eat foods high in b2 I wake...
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    B2 riboflavin / long term muscle issues now becoming very hard to walk

    Hello community I have been dealing with a muscle condition since I was 19. I am now 49 y/O male. At age of 19 I was practising the guitar and noticed slight twitches at the top of my forearms. Over the coming weeks they started popping up In different parts of my body. I was very active at the...
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    B2 I love you!

    Oh. Cheers. Thats quite the thread. Translator to isle 3 please!!
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    B2 I love you!

    So can i ask, anybody the following Am i wasting my time / money taking b1, b2, and b12 as long as i am not able to take b2 due to nasty reactions to it? As i read someone say that without b2 the other B vitamins don't have any effect, Is this accurate?
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    B2 I love you!

    Yea the first geneticist who gave me the diagnosis didn't even tell me to take b2, suggested a muscle biopsy in the letter he wrote to my GP. I feel as though he just didn't have any clue about the illness and passed the buck. I googled it and read about how people who have this illness take B2...
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    B2 I love you!

    I am only able to take b2 or b3 for no longer then 2 days. Then i can barely move for a cpl of days. So it inducing deffciency in other vitamins wouldn't factor in. Metabolic doc i saw cpl months ago said "just try riboflavin again". Aka not going back to him.
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    B2 I love you!

    Do you feel any benefits?
  9. D

    B2 I love you!

    Thanks Kath, B12, b1, b6, i never have had any issues with at all, been taking sub b-12 for best part of a decade, it's just the b2 that floors me. 10 years ago i tried b3 as some natropath recommended it and it had the same effect. maybe even worse. Muscles in face and left side of body aching...
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    B2 I love you!

    I have had nasty fatigue and muscle degeneration for 20 years and it turns out i have a mitochondrial disorder which riboflavin is meant to help greatly with. Yet within 24 hrs of taking even a small dose it my left hand side gets even weaker and symptoms flare up. With other people who take it...