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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. M

    Rituximab Phase III - Negative result

    Learner - I 100% agree. There is a new company here in Canada that does precision medicine reports - MolecularYou (like Arivale in the US) - and I keep introducing the idea that MolecularYou look at ME/CFS as an area of tailored biomarker-based investigation and treatment (and for other...
  2. M

    How do you market a disease to researchers?

    Fair enough. I think being outcast for studying ME/CFS and money are bigger issues. And I'm contemplating this idea of suing the NIH. Is that something that's been done?
  3. M

    How do you market a disease to researchers?

    I don't disagree - which is why I say "rightfully pissed " about the allocation of funds. But the tone of dialogue from *outside* looking in, a non-ME researcher would see the high profile, vocal, UK researcher(s) complaining of hostility. I am 100% for more biomedical funding. I am 100% in...
  4. M

    How do you market a disease to researchers?

  5. M

    Comment by 'MandM' in 'My Current Understanding of ME: Part 4 - Lactic Acid/PEM'

    Thank you very much. This is clearly written and makes sense of several loose ends of research I have been reading. I look forward to going back and reading your other posts.
    • MandM
    • Blog entry comment