• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

    To become a member, simply click the Register button at the top right.

Search results

  1. B

    Root canal verses extraction

    Hi everyone I’m feeling so overwhelmed. I had a tooth infection and was talked into having a root canal. I’m Half-way through and have had a major flare-up of symptoms. I’ve read a lot of stuff online about how root canals can harbour chronic infection. I”m leaning towards having it pulled...
  2. B

    starting cycloferron

    Hey Heapsreal Where do you get the valcyte from and the vost it seems over the top in Australia Beth
  3. B

    Increasing Famvir Dose

    Hey Heaps Are you considering getting sinus surgery it's been the best thing I ever did. My daughter has also just had the same op and adenoidectomy after being sick for almost a year, so waiting for the result. I haven't been sick at all, not a virus or cold since June last year the longest...
  4. B

    Increasing Famvir Dose

    Hi Heapsreal I really feel for you and understand how quickly you slip towards ruin if you can't work! I hope that you can get back to full-time work and that you find that Valcyte is the key. I watch your journey on anti-viral with interest and heres to hoping you get a break! I think it's...
  5. B

    starting cycloferron

    I'm getting close to full health or at least 95%. Thinking Doxy turned it around but I have been taking them both about the same time so maybe it is the combo! Will Drop famvir and see if any change happens! Beth
  6. B

    My experience on Famvir

    Hi Everyone, Feel so much better since I have started Doxycycline. I think that the strepA infection and chronic sinusitis that was harbouring it was the key to my improvement! I feel well enough to compete in a little triathlon this week end and have been working , socialising and doing...
  7. B

    My experience on Famvir

    Hi all I'm doing a little better and have been diagnosed with a sinusitis infection with possible cause being strep A have started on Doxycycline 100mg a day and have turned the corner a bit. Am planning to finish the Famvir Im on but not dure if I will continue if the issue is around chronic...
  8. B

    My experience on Famvir

    Hi all, I got my bloods back and everything was in normal limits accept I was strongly positive to Strep A! I was EBV and CMV positive from past infection! My current regieme is Famvir 250mg bd, cycloferon 2 tabs second daily and Penicillin 500gm bd as well as a whole heap of other...
  9. B

    starting cycloferron

    I started Cycloferon on Thursday! A bit scary taking a yellow tablet from a box with Ukraine writing but willing to try just about anything. This has coincided with starting on penicillin to kill strep A infection discovered in blood test. Feeling moderately better and have been able to light...
  10. B

    Thought on AVs and die off's

    XMRV may be the key to the two things that plague my family, CFS, and autism all in my generation and done, Oh and Cancers in my parent generation! I thought of emailing the makers of Famvir and tipping them off what people re using them for??? Am nursing the mother of all headaches with...
  11. B

    Thought on AVs and die off's

    I think that I am having some sort of die of heapsreal! I actually have increased dose for 5-7 days thinking that it may quicken the process. Your thoery is interesting I just wish we had access to better testing in Oz to see what is going on in our bodies. I have asked my GFP to email my blood...
  12. B

    Transmission among family and ????autism connection

    Hi I was wondering if some of you very knowledgable people can help me or point me in the right direction! I read that there has been a connection between members from the same family having CFS through something like or the XMRV retrovirus as well as a connection to autism! Breifly my...
  13. B

    My experience on Famvir

    I've decided to do something similar to Alice and take 500mg bd for 5-7 days then drop back to 250mg.Just to give this viral thing a bit of a hit on the head. Still feel glands but less intense. I have a really sore neck not sure if this is a EBV symptom or just injured! Will see my physio...
  14. B

    My experience on Famvir

    Good luck Alice , I wonder why he started you on a higher dose then dropped back? Let me know how you fare! Heapsreal that's such great news that you are well enough to exercise hoping I can do the same sometime soon! Beth
  15. B

    My experience on Famvir

    End of week one! Exacerbation of symptoms yesterday, A lot more feeling of 'congestion in my neck" eg stiffness, tender lymph nodes and chronic headahe! Haven't had this constant feeling for over 12 month so who know's maybe some of a die of affect happening! Here's to hoping. Beth
  16. B

    Have you had a remission?

    I Have just had over 12 months of good health was working 8 nursing shifts a fortnight and had returned to triathlon training and racing with the family. Then in October had a crash via a viral infection now 3 months into it and at about 80% I can't put in words how harsh it is to be well and...
  17. B

    My experience on Famvir

    Haha If i get better I say we go into business and save the world from CFS and retire from caring for the world!!!
  18. B

    My experience on Famvir

    Hi I'm new to this forum but not new to CFS. I have just started Famvir 250mg bd and thought I would post my experiences as a record for myself and for others A few brief facts about me: CFS since early 2007, after history of training and competing in triathlon, 1st year quite...
  19. B

    Valacyclovir or Famvir?

    I'm also trying Famvir 250mg twice a day! Dont think I could afford any! So far 5 days and no side effects!