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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. ChiliPep

    Why do I do better without much sleep and yet exhausted after sleep?

    I get the same thing. Feel like I’ve been beaten and dragged through the streets and then poisoned when I wake up. The more I sleep, the worse it is. I feel better if I’ve had just 3 or 4 hours of sleep, but then the lack of sleep catches up to me later. I feel like I spend all day recovering...
  2. ChiliPep

    Watching Unrest again, I'm noticing something.

    @Starsister I know how you feel, I just finally figured out today how to quote. Sounds like compression stockings would not be tolerable for you. I think they feel soothing to my skin once they’re on, but they are definitely tight and I don’t have allodynia which sounds horrible. There is some...
  3. ChiliPep

    Watching Unrest again, I'm noticing something.

    I buy my compression stockings from CompressionSale.com. The brand I like is Jobst. It’s important to get the 20-30 mmHg. I like the open toe option. I get their “Relief” style, not as hot as others. Strangely their sheer options are very hot. It takes a lot of energy to get compression...
  4. ChiliPep

    What does your Fitbit data look like?

    @bspg its hard to tell if my resting HR correlates with activity, I wish I could overlay the two to better tell. It has been going down overall so maybe it is because of increased activity the last couple months. @Murph interesting about the new data being so sensitive, rolling over and it says...
  5. ChiliPep

    What does your Fitbit data look like?

    @bspg thanks, that helps a lot!
  6. ChiliPep

    What does your Fitbit data look like?

    @bspg His watch was set to double click call 911, he changed it to require an additional screen tap so it shouldn’t happen again, knock on wood. Yes I’m in desperate need of more sleep, I try so hard. Don’t know what else to try. My data only shows red (awake) if I actually get out of bed...
  7. ChiliPep

    What does your Fitbit data look like?

    @bspg Wow, you wake up a lot, that’s rough. Yours gives you so much more/better data. Mine’s a couple years old—Fitbit Charge HR. I’m getting a new one anyday now, ordered it $50 off Black Friday, so maybe then I’ll get cool sleep data like yours. I wish we could upload our data into the...
  8. ChiliPep

    What does your Fitbit data look like?

    I think my new insomnia cocktail has lowered my resting heart rate. This is how my 30 day sleep displays, doesn’t show REM...
  9. ChiliPep

    What does your Fitbit data look like?

    I hadn’t even noticed this until now, I just started on Baclofen & Schiff Melatonin Ultra for my insomnia. Here’s before Baclofen (on klonapin, plain melatonin, and Kirkland sleep aid) Here’s on Baclofen, klonapin, and Schiff melatonin Ultra. See how I’m getting longer stretches of...
  10. ChiliPep

    What does your Fitbit data look like?

    This is higher for me because I’ve been moving my mom out of her house of 25 years into “The Home” This is my normal
  11. ChiliPep

    What does your Fitbit data look like?

    Cool idea! I’ll post mine in a bit but how did you get your sleep to show the different types of sleep (REM, light, deep...)? Mine only shows total sleep.
  12. ChiliPep

    Eliminating scents

    I would remove the drawer, clean it real well, and then put it in the garage with a fan on high pointing at it to accelerate the off-gassing. And also open a window and point a fan at the dresser itself with the other drawers open. Later, you could put some plants in that room to clean any...
  13. ChiliPep

    What is your favorite probiotic

    I take them both at the same time. I feel worse if I don’t take them fatigue wise, but frankly I switched to these due to a severe case of c.diff that I had for almost three months. I ended up in the hospital for a week from blood sepsis caused by the c.diff. and my gastro insisted on VSL and...
  14. ChiliPep

    What is your favorite probiotic

    I take VSL#3 available behind the counter at Costco, and I take Jarrow Formulas - Saccharomyces Boulardii + MOS (same stuff as Florastor but much cheaper), I get it at Sprouts grocery store as it’s too hot here to get it by mail unless they sent it in a cooler pack. Both have to be refrigerated.
  15. ChiliPep

    Bought sleep supplements, which should I try first?

    I think I read about Niacin and/or methylfolate helping sleep and ended up getting the B-complex. I'll take it in the morning and see if it helps my energy rather than at night for sleep. The Thorne brand I bought has the methylated folate and methyl B12 so hopefully I won't have a problem. I...
  16. ChiliPep

    Bought sleep supplements, which should I try first?

    I bought some sleep supplements, and I'm going to try one at a time. I'm not sure which one I should try first. I also have some melatonin on the way but it won't be here for a few days and I've tried it before and know it only helps me with falling asleep and doesn't always work. I have...
  17. ChiliPep

    Could I have Lyme still or CFS started by Lyme?

    That's interesting. I've noticed over the years that I always get relief from my autoimmune diseases and allergies when I'm in the hospital for something big like when I have surgery or once I had a perforated Meckel's diverticulum (which is like a burst appendix but not the appendix) and...
  18. ChiliPep

    Could I have Lyme still or CFS started by Lyme?

    So my CFS started around 1997. I was in denial for so many years blaming myself for being lazy that I don't really know how it started. One thing that did happen In 1997--I was in Northern Minnesota and Wisconsin for a couple weeks in the deep woods hiking and got a big bullseye rash on my...