• Welcome to Phoenix Rising!

    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Search results

  1. G

    Dr Kaufman or Dr Cheda? Why

    Thinking of travelling to The Center for Complex Diseases to see Dr Kaufman or Dr Cheda. If you had to choose one, which would you chose and why? If you have been to see either of them how many days where you there and did you have to travel to other places for labs etc? What would you...
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    Addisons and thyroid Issues

    Does anyone have any advice for a 16 yr old boy with Addisons and Thyroid issues who,is struggling at the moment and fatigue is bad? His parents are keen to see an autoimmune specialist or very good internalist or functional medicine specialist. Any tips who,to see in the UK or USA?
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    Smile Trial publication by Ester Crawley at the Science Media centre

    https://www.facebook.com/james.c.coyne/posts/10215114045751365 Pls see the above link. Ester Crawley is attending the Science Media Center on Wednesday to publish the findings of the SMiLE trial on the Lightening process for kids!! It would be great if someone could attend, video or alert the...
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    Correspondence with the Mayo Clinic re ME/CFS! (amazing response) - UPDATE

    Another woeful article on adolescents and ME on the Mayo Clinic site aaaggghhhh. The constant referral to behaviour issues. It is both medically and scientifically embarrassing that they put such rubbish on this site. As a parent I would be grateful if they would at least update or correct this...
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    Peter White gets set to speak at Swiss Re Insurance Medicine Summit 2017

    So many conflicts of interest and personal gain at the expense of ME patients. A court case is needed to bring all of those involved in scientific fraud to justice!!
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    New Blog from Cort about Stanford/OMF Community Symposium and how Ron Davis approaches science

    Excited about this, how do we in the UK watch the livestream? Is any registration needed or what is the link? Thks
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    Scientists trade insults over ME (JHP special issue)

    Daily Mail today Health Section online better than the Times http://www.dailymail.co.uk/health/article-4749208/Angry-scientists-throw-insults-regarding-flawed-study.html#ixzz4oVLZUwAX
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    Scientists trade insults over ME (JHP special issue)

    I believe more will be revealed in the next few weeks!!
  9. G

    Scientists trade insults over ME (JHP special issue)

    There has been considered effort,influence, and other means used to stop the truth coming out that why Coyne has reacted as he has. The emails etc have been flying and he wasn't dancing to their tune!!
  10. G

    Scientists trade insults over ME (JHP special issue)

    Exactly the corruption has to be exposed for what it is!!
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    Scientists trade insults over ME (JHP special issue)

    WE'RE IN THE TIMES!!! https://www.thetimes.co.uk/edition/news/scientists-trade-insults-over-myalgic-encephalomyelitis-me-study-slk0cv5lj An acrimonious scientific row has broken out after a £5 million publicly funded study investigating treatments for chronic fatigue syndrome was condemned as...
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    BBC Radio 4: Children with ME

    Very disappointed in this program. There was no mention of biomedical science and the work of invest In ME, the scale of the medical abuse was totally ignored, R Hammond was the only Professional who was allowed to talk , no mention of Dr Speight or any other paediatrician, the complete medical...
  13. G

    Riddled with Lactic acid?

    Thanks
  14. G

    Riddled with Lactic acid?

    Symptoms
  15. G

    Riddled with Lactic acid?

    I am currently riddled with lactic acid , can you pls advise how I reduce this and what is causing it? Broken kerbs cycle or?
  16. G

    Ron Davis, Ashley Haugen, Linda Tannenbaum and Raeka Aiyar at IiME #OMF

    Great minds think alike!!
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    Esther Crawley - 18th May 2017 - A day with the MUPP(ets) and more

    Beyond disgusted at yet another scam to undermine ME. The apology was pathetic but the real question is who wrote this, why and who approved this agenda. I believe these type of lectures have been going on for years. It has Ester Crawley's signature all over it. Where is the science? Pure drivel...
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    Crawley: How to deal with anti-science BRS2017

    We need everyone to write a complaint to the GMC plus her University, Wellcome and any research boards etc she sits on.
  19. G

    Crawley: How to deal with anti-science BRS2017

    As a parent of a child with ME with physiological symptoms I have had to put a legal ring fence around my happy but ill child to stop her being pushed into mental health services and to stop her being sent to a psychologist that she does not need. She is a very calm, sensible, ambitious child...
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    Forward ME Group Minutes, March 14 meeting

    Sorry Tom I don't know why it became mixed with your comments edited.
  21. G

    Forward ME Group Minutes, March 14 meeting

    I think the issue is one of fraud and misfeasance in public office. The wages of teachers and Drs and social workers are paid from public funds. Parents are finding their child's educational records and medical records tampered with plus false and manufactured statements are made. There are also...
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    If this is a temporary post-viral fatigue then why aren't I feeling better?

    Get all your infectious blood tests done especially EBV all tests for any of the herpes family If you have something then you need antivirals and to see an infectious disease consultant. Get these done asap as you stand a better chance of a good recovery the quicker you know and get treated.
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    PACE trial re-analysis paper (Wilshire et al) is now open access - thanks to MEA!

    N Not soon enough!! The dangerous practice of pushing exercise in metabolically compromised children and adults plus the undermining of their very serious symptoms and insisting a bit of positive cbt would cure them has been enormously damaging, dangerous and harming.
  24. G

    If money no object which clinic, which Dr in the USA and why?

    Great thanks very valid points I hadn't considered.
  25. G

    If money no object which clinic, which Dr in the USA and why?

    If money where no object which Doctor , which clinic would you choose and why in the USA for adults with ME? Which clinics can you get into within a reasonable time period n the USA? My friend is very ill 19 years ME, I believe she has many infections and a family member has offered to pay for...
  26. G

    Epstein Barr Quer

    Many thanks
  27. G

    Epstein Barr Quer

    Our daughter has ME and has had non stop recurrent viral episodes. Recent bloods show Epstein Barr VCA IgG 223 U/ml , positive result > = 20 U/ml Epstein Barr EBNA IGG 34 U/ml, positive result > = 20 U/ml Epstein Barr VCA IgM <20 U/ml , borderline 20-39 U/ml Can any medics or scientists...