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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. S

    Transdermal B12 oils

    Thank you. Actually, I know what the issue is. I was hit by Cipro in 2013 and it severely damaged my body and in particular my nervous system. But my b12 was always normal/high before then and plummeted to around 350 only 2 weeks after being poisoned by Cipro. Since I tried sublingual mb12 and...
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    Transdermal B12 oils

    I want to thank the so many of you on this and other threads that have provided so much valuable information. I've spent 6 months now reading and reading. I read the entire thread "The Hidden Story" and now this one too. I've just ordered my first bottle of B12 oil from Australia. I don't have...
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    Mysterious Undiagnosed Illness-seeking advice, suggestions and stories!

    Thanks, Caledonia :)
  4. S

    Mysterious Undiagnosed Illness-seeking advice, suggestions and stories!

    Thanks, Valentijn. So, those whole idea of sublinguals for 45+ minutes is incorrect and unfounded? I can say that there's some absorption going on (not necessarily for than just swallowing- I don't know) because my nerves react very strongly to mb12 at even 1-2 mg. I took hydroxy and adeno for...
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    Mysterious Undiagnosed Illness-seeking advice, suggestions and stories!

    Hello, Caledonia. I've been doing a lot of reading the past 6 months, mostly on Freddd's old threads. I've now started reading your information on methylation. It's wonderful information. My body has struggled with mb12, however, and I cannot tolerate even 100 mcg of folate without flu like...
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    B-12 - The Hidden Story

    Thanks, Eastman. It appears that the b12 is way more important for me because this is a neuropathy issue and not an ME/CFS issue. But maybe folate is essential for the methyl b12 to really do it's job. I'll keep trying to add it in.
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    B-12 - The Hidden Story

    Sorry for what I assume is a bit of an uninformed question. I started up methyl b12 and adeno b12. Had a definite response- neuropathy was way more active. Titrated up to about 4000 methyl and 3000 adeno over 2 months. Never really involved folate. Now, however, even small doses of folate (200)...
  8. S

    B-12 - The Hidden Story

    Thanks, Caledonia. I'm at a level of pain I can handle. It's nothing new- just a more intense version. If it lasts for a couple of months, I can push through. It's just always a little scary when it feels like you're going backwards. I'm stable at 3 mg of b12. It isn't a big change from 1 or 2...
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    B-12 - The Hidden Story

    @Freddd And Others- I've read all 175 pages of this thread. I do not have ME or CFS. I'm a floxie, someone who's been damaged by fluoroquinolone antibiotics. My body has healed quite a lot over the past 3.5 years, but the nerve pain in my feet, which has improved, is still very much a problem...
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    B-12 - The Hidden Story

    Thanks, Peter. I actually just ordered the Solgar. Seems like they are a good company and their tablets don't have citric acid or fructose which I like.
  11. S

    B-12 - The Hidden Story

    Thanks, Johnmac.
  12. S

    B-12 - The Hidden Story

    Hi, all. A silly logistical question. If one needs to totrate up to 10-20 mg of methyl b12, how is this really possible with ET lozenges that are only 1 mg each? Really, I'm going to consume half the bottle per day? Is there not a 5 mg option that is decent? Thank you!