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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. L

    Mold or Oxygen? Feel better in Hawaii

    I've had CFIDS since 1991 - with no apparent reaction to mold or anything else - but now I do. Since a toxic mold exposure last year everything has changed. What I'm curious about is exactly HOW do you (anyone) travel, experiment w/ different locations, camp in the desert, or anything else...
  2. L

    RANT Stop Suggesting Jobs for Me!

    EXACTLY!! Bilderbergers/ruling elite do NOT get sick like this .... we know where Lyme came from, and I think CFIDS came about the same way. How else to explain the initial cluster outbreaks in Tahoe, Lyndonville, etc.? Since the Fukushima meltdown(s) last March I wonder if they are somehow...
  3. L

    Chronic Sinus Problems

    hi Carrigon - I have a chronic sinus infection that started early last fall - and felt somewhat better overall temporarily on abx - but it turned out the problem was really toxic mold exposure. I've had CFIDS for just over 20 yrs., and was never reactive at all to any kind of mold ... til...
  4. L

    Comment by 'lisann' in 'CFSgate is AIDSgate.'

    Sadly most people in general, including cfs patients, do seem to believe that their government has their interests at heart - and of course it is untrue. The exact opposite is closer to the truth. I am SO glad to see someone talking about this here, or anywhere! I completely abslolutely...
    • lisann
    • Blog entry comment
  5. L

    Comment by 'lisann' in 'CFS, ME, & AIDS: Syndrome vs. Disease'

    I was also diagnosed w/ CFIDS - and have always called it that - but most drs. I've had will still write 'cfs' as diagnonsis .... and other than maybe a handful of specialists in the US, no dr. is going to recognize or use the term ME. One pain management dr. I had, w/ a better understanding of...
    • lisann
    • Blog entry comment
  6. L

    Comment by 'lisann' in 'How to raise glutathione within cells and reduce tnf-alpha inflammation'

    This comment may belong somewhere else as it's about iherb and not this particular supplement - but as good as their prices are, so far I haven't ordered from them because of the number of negative reviews I've read online .... there seem to be numerous problems w/ international shipping, but...
    • lisann
    • Blog entry comment
  7. L

    Improving Using Rife and CDS/MMS (Miracle Mineral Solution) for Lyme -- Coronavirus Update

    hi Wayne - I'm just now catching up on your posts ... the past few months I've had WAY more stuff to do than I can possibly manage, so anything not absolutely required falls off the list, I'm sure you all know what I mean. (Honestly at this point in my life/illness I would personally put this...
  8. L

    new empowher article: 10 Observations About Recovery From CFS

    Thanks Jody, it works fine now. Over the past few years I haven't been 'well' enough for long enough to think about it much .... but in the past I've tried several treatments that started to work (for a few weeks when they didn't anymore) and I remember thinking I have absolutely NO life to...
  9. L

    new empowher article: 10 Observations About Recovery From CFS

    hi Jody - I don't think your link is working - at least it doesn't for me. Lisa
  10. L

    dr holtorf immunovir

    Looks like this was posted on July 6th - I can't believe no one here has tried this, I rarely find anything I'm thinking of trying that there isn't already an existing thread on! I have the same question .... I was just about to order some and decided to check here first. I think I saw it...
  11. L

    GcMAF trial

    OK - this was about to be my next treatment attempt..... Would those of you who have been using/ordering this, and apparently having it get sent back (always? sometimes?) recommend even attempting to order it at this point? Obviously it's quite expensive, I'd definitely have to sacrifice...
  12. L

    What Is A Rife Machine?

    Hi Wayne - I actually just today left a post directed to you (on an ozone thread) about Rife. I've already done a lot of reading about Royal Rife's story and the use of his technology, and am convinced enough that it's worth trying. Have you found a clinic that provides this therapy, or...
  13. L

    What are symptoms of inflammation of oxidative stress?

    Sorry about my above post - I can't even read it myself! I'll be sure to space things out better from now on. Thanks again, Lisa
  14. L

    What are symptoms of inflammation of oxidative stress?

    I'm so glad to see this post anniekim as I have just been wondering this same thing... I started a 30-day H202 treatment protocol about 9 days ago - it starts w/ a tiny amount and has a slow scheduled increase over 30 days, however I have not even been able to keep up w/ the recommended schedule...
  15. L

    Ozone anyone?

    Hi Wayne - This may not be the best place for this post, but hopefully you'll see it.... I just found this site a few months ago, and have been reading through as much treatment info as I can every day. I've noticed that your name/posts seem to consistently turn up on everything I'm currently...
  16. L

    Its lawsuit time . . .

    I'm just seeing this for the first time today, and was wondering the same thing... is anyone still thinking of or planning on doing this? I would LOVE to see the CDC in court over 'cfs'!
  17. L

    The HORRORS of Klonopin addiction

    Jenbooks - I know it's because I didn't properly titrate off - I didn't expect the severe w/d and didn't even know about titration until about day 4 - but it wouldn't have mattered. My dr. decided I needed to get off of it, and in his opinion it should take no more than 4 weeks max for me to...
  18. L

    The HORRORS of Klonopin addiction

    "Horrors" of klonopin is the perfect title for this thread.... I had to quit klonopin after only nine months, and the withdrawal I went through was the WORST 12 days of my life. (That was just the worst part - it was by no means over in 12 days) And that's saying ALOT - I've had ME/CFS for 20...
  19. L

    Article: People With ME/CFS Protest in Front of Department of Health and Human Services Building

    Hi Rivka - I just saw the video at the link you posted above, w/ your mom, and I tried to leave a comment on your youtube page but it didn't post. So I'll try to remember what I wrote and post it here! I've been sick for 20 years too, this year. A lifetime. Thank you both for the work you're...
  20. L

    Comment by 'lisann' in 'Masks'

    Alex - you definitely spoke perfectly for me as a patient w/ this for close to 20 years now. At the moment I have a hard time being articulate so I definitely appreciate basically having people like you write down what I myself am feeling. Thank you!
    • lisann
    • Blog entry comment