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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Exercise tolerance test… Scared of PEM.

    I have written to the cardiologist concerned via his secretary to express my concerns, asked him exactly what this test entails and telling him that I only want to do the test if it is vital and I would prefer him to find another way to find the results. I also attached a copy of the ME...
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    Exercise tolerance test… Scared of PEM.

    Thank you so much for Telling me of your experience. I think you were very brave to take part in the study and I hope that you are back to the baseline that you were at before the study. Good luck.
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    Exercise tolerance test… Scared of PEM.

    Mattie Did you decline because of the severity of crash that could happen? Was Yours going to be on the treadmill?
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    Exercise tolerance test… Scared of PEM.

    Sushi Thank you for your information. Good idea about the recovery bag. I definitely need to find out as much information as possible and also make him realise how serious the consequences could be. I’ve then got a big decision to make I think.
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    Exercise tolerance test… Scared of PEM.

    I -lava-u how did you react to the test And did they try and push you to carry on when you thought you should stop? I want them to get the information that they need about my heart but not at the expense of my CFS. Dilemma!
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    Exercise tolerance test… Scared of PEM.

    Hi Chris,I think it will probably be an exercise treadmill. When I googled NHS exercise stress test that’s what came up.
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    Exercise tolerance test… Scared of PEM.

    I have just started investigations for POTS And during my ECG A slight abnormality showed up and I have received a letter saying I need an exercise tolerance test. Really don’t want to do this as I’ve just crawled my way back To the level I was last July. (Bad crash due to a 2 week...