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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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    Brain on Fire: Widespread Neuroinflammation Found in ME/CFS by Jarred Younger

    I smoke it, vape it, eat it, drink it, grow it... lol, I live in Colorado, very cannabis friendly. I've never had canna-tea, I'll have to put that on my list. It can be definitely a sleep aid but be sure to know what strain you have. Indica's are the goto strain for sleep, sativa's are way to...
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    Brain on Fire: Widespread Neuroinflammation Found in ME/CFS by Jarred Younger

    My health issue is definitely inflammation. Some things that have helped are a low inflammation diet (Keto), cannabis and a Rife machine. Cannabis works to reduce inflammation at the cellular level. It seems to last 2-6 hours. The Rife machine works longer term (I've had relief for a week or two...
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    Viral Parkinsonism

    Jes If I understand correctly, intravenous acyclovir works much faster but is quite expensive. I just haven't heard too much about ME patients with having it intravenously, unless as noted an acute infection (IE; HSV encephalitis). For the pill version valacyclovir seems to be favored and more...
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    Viral Parkinsonism

    Thanks Jes The only reason I mention HSV-1, is that I could find scientific articles of people having HSV-1 and their treatment of intravenous acyclovir. I understand it's acute and most if not all treatment is for an acute infection. My highest titer level of all the viruses active happen to...
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    Viral Parkinsonism

    Thanks Hip, very good stuff, thank you very much! Daffodil - I will get tested for Lyme. I am responding favorably with the Valtrex so far but I have a long ways to go. Vegan - I know that Acute Encephalitis is fast acting and lethal. What we are dealing with in ME seems to be a low grade...
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    Viral Parkinsonism

    Hello all. I am new to this CFS/ME world but I think it fits more closely to what I am dealing with. I started off 4 plus years ago with shoulder blade pain, neck pain,, rigidity (flu-like fatigue) and a tremor. The tremor got all of the attention and I was boxed in with a label right away...
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    First sign of Recovery

    Hey Louie, I hope that it is a good sign for you. That just happened to me too. I have been dealing with this thing for four years and recently started Valtrex 2 months ago. I've been cold virus free that entire 4 years until 2 weeks ago and was slammed by a cold virus. All viruses must of...
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    Flu vaccination and ME/CFS

    I can't prove it but my first ME symptoms began shortly after a flu shot.
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    Valtrex: what should I expect?

    Thanks corn. I do recall reading that now about ketosis now that you jogged my memory. I am taking a Medical Medium (Anthony William) approach to things who says fruit is good.
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    Valtrex: what should I expect?

    I am already low carb, no sugar, no refined/processed foods. I don't know if I get into keto or not. Sorin - Chronic EBV/fibromyalgia. My Doc treated himself and spouse 25-30 years ago with anti-virals when the "yuppy flu" was going around. He admittedly said he relapses from time to time and...
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    Valtrex: what should I expect?

    I started 1.5 months on Valtrex (l gram x 3 day) and L-Lysine (same). In addition Vit B complex, AHCC, Alpha CRS, Maitak DMG, Baicalin, tumeric, cats claw, licorice root, immuno DMG (Beta Glucan), CBD. I eat clean, non-gmo mostly fruit smoothies laced with tumeric, ginger, thyme and cilantro...