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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. Pyrrhus

    Incomplete digestion of food (and possible malnutrition) due to dysautonomia?

    Very interesting, I have heard similar stories from other patients. And some patients report that they get a colonoscopy/endoscopy and their doctor says "it all looks fine, just some hints of inflammation, nothing to worry about..." Or it's possible that both gastroenteritis and dysautonomia...
  2. Pyrrhus

    Federal Reserve Blog Post on Long Covid and ME/CFS

    @Murph you may be interested in this one...
  3. Pyrrhus

    Federal Reserve Blog Post on Long Covid and ME/CFS

    Excellent job! It's great to have people like you on "the inside" where the decision makers are! Especially while the media are trying to play up "the Great Resignation" as some sort of cultural phenomenon...
  4. Pyrrhus

    Article Dr. Natalie Eaton-Fitch Discusses Repurposed Drugs and the Treatment of Myalgic Encephalomyelitis (ME)

    Excellent interview, @Bronc!!! Thanks.
  5. Pyrrhus

    Fie, Fauci!

    The CDC, unsurprisingly, from early on in the pandemic.
  6. Pyrrhus

    Overlap between ME and PANS? (conference abstract)

    Related discussions: A Boy, His Brain, and a Decades-Long Medical Controversy https://forums.phoenixrising.me/threads/a-boy-his-brain-and-a-decades-long-medical-controversy.83394/ Anyone else with PANS/PANDAS? https://forums.phoenixrising.me/threads/anyone-else-with-pandas.59402/
  7. Pyrrhus

    Overlap between ME and PANS? (conference abstract)

    Chronic Fatigue Symptoms in Children with Abrupt Early-onset OCD And/or PANS (Chan et al., 2020) https://acrabstracts.org/abstract/chronic-fatigue-symptoms-in-children-with-abrupt-early-onset-ocd-and-or-pans/ Abstract (emphasis added)
  8. Pyrrhus

    Vitamin D and / or sunlight making your ME worse?

    Related discussions: Anyone Else get ill after exposure to sunlight - not just the heat https://forums.phoenixrising.me/threads/anyone-else-get-ill-after-exposure-to-sunlight-not-just-the-heat.3303/ Vitamin D sensitivity https://forums.phoenixrising.me/threads/vitamin-d-sensitivity.37336/
  9. Pyrrhus

    Orthostatic Intolerance in Long-Haul COVID after SARS-CoV-2: A Case-Control Comparison with Post-EBV and Insidious… (van Campen & Visser, 2022)

    Thanks for posting this new (van Campen and Visser, 2022) publication! For comparison with their other publications, see: https://forums.phoenixrising.me/tags/frans-visser/ https://forums.phoenixrising.me/tags/linda-van-campen/ It's very interesting to see that it is part of a topical...
  10. Pyrrhus

    Incomplete digestion of food (and possible malnutrition) due to dysautonomia?

    Good point about the potential for nutrients to act directly on the intestinal cells themselves. I would point out that, in addition to the "incomplete digestion" hypothesis, there are also plausible hypotheses related to absorption, rather than to digestion: The "supraphysiological...
  11. Pyrrhus

    Exercise Intolerance vs. PEM/Exertion Intolerance

    There is currently a theory circulating that tries to link (aerobic) "exercise intolerance" to "PEM/exertion intolerance", by invoking a phenomenon called "ischemia-reperfusion": "Ischemia" simply means a restriction of blood to a tissue, such as a muscle. "Reperfusion" simply means the...
  12. Pyrrhus

    Incomplete digestion of food (and possible malnutrition) due to dysautonomia?

    Just in case you haven't already seen it, there's a discussion on that weird symptom: Feeling exhausted after bowel movement https://forums.phoenixrising.me/threads/feeling-exhausted-after-bowel-movement.42146/
  13. Pyrrhus

    Incomplete digestion of food (and possible malnutrition) due to dysautonomia?

    Incomplete digestion of food (and possible malnutrition) due to dysautonomia? For years, I have wondered why nutrients in a purified supplement form seem to have much stronger effects on me than the exact same nutrients in food form: There are a couple of possible explanations that could...
  14. Pyrrhus

    Real-world effectiveness of early molnupiravir or nirmatrelvir-ritonavir in COVID-19

    Assuming your doctor has determined that you are a candidate for Paxlovid, then I would say yes, it is definitely better than nothing at all. Hope this helps.
  15. Pyrrhus

    Botkins! Little robots that allow bedbound patients to explore the world!

    Botkins! Little robots that allow bedbound patients to explore the world! Bedridden Swiss ME patient Dejan Lauber has designed a small robot that his family takes with them wherever they go. This allows bedbound Dejan to follow their lives via his small robot. Now he wants to make small robots...
  16. Pyrrhus

    Cholecystokinin - When Bile release becomes an issue

    You may find these two posts interesting, as they discuss how dysautonomia can result in insufficient digestive enzymes: https://forums.phoenixrising.me/threads/pancreas-damage-exocrine-pancreatic-insufficiency-epi-and-chronic-fatigue-syndrome-cfs.62997/page-11#post-2374507...
  17. Pyrrhus

    Chronic nausea

    I'm afraid I don't know all the interactions between mirtazapine, quetiapine, and metoclopramide. All I can say is that I no longer take any stimulant laxative/gastroparesis medication like metoclopramide or sennosides, as they seemed to make my gastroparesis worse in the long-term. Instead, I...
  18. Pyrrhus

    Fun with science videos

    Mitochondria networks on the move: Textbooks usually show mitochondria as individual organelles fixed in space. The reality is somewhat different...
  19. Pyrrhus

    GlycoRNA: another 'hiding in plain sight' discovery

    Bertozzi just won the Nobel prize in chemistry. Hear that, chemistry students? You won't have to balance any chemical equations in order to win the Nobel Prize in chemistry! ;)
  20. Pyrrhus

    Late pandemic immune dysregulation? Opportunistic infections and unexplained pediatric hepatitis

    New preprint on pediatric hepatitis from Charles Chiu: Adeno-associated virus type 2 in children from the United States with acute severe hepatitis (Servellita et al., 2022) https://www.medrxiv.org/content/10.1101/2022.09.19.22279829v1 Good news: Excellent, unbiased methodology - and a control...
  21. Pyrrhus

    Another Equilibrant Thread

    It was very many years ago, but I remember that it kind of, sorta, seemed to work at first, but then it just seemed to produce vague inflammatory symptoms. My skin suddenly became sensitive to my normal moisturizer, which stopped when I stopped the equilibrant...
  22. Pyrrhus

    Noise Cancelling 2022

    I bought a pair of the Sony WH1000X and bizarrely, it produces annoying static noise in the right ear whenever I turn on the noise cancellation. Other users have reported this defect on the web, but Sony refuses to recognize that some headsets come with static noise. Weird. So I went back to...
  23. Pyrrhus

    CDC finally admits: Enterovirus D68 causes paralysis

    Well, the 2022 Enterovirus D68 season is in full swing, and the CDC is not even trying to hide the fact this time around! Increase in Acute Respiratory Illnesses Among Children and Adolescents Associated with Rhinoviruses and Enteroviruses, Including Enterovirus D68 — United States...
  24. Pyrrhus

    An attempt to explain the neurological symptoms of Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (2021, Wirth et al)

    This paper has been used to justify the currently popular "ischemia-reperfusion hypothesis", which proposes that PEM is caused by improper blood flow. Whether or not that is a correct characterization of this paper's intent, the "ischemia-reperfusion hypothesis" falls flat upon further...
  25. Pyrrhus

    Feel Like You’ve Run a Marathon? Long COVID Study Suggests Why - Healthrising

    The blog tries to link the research to the currently popular "ischemia-reperfusion hypothesis", which proposes that PEM is caused by improper blood flow: Putting aside the fact that "chronic transient ischemia" is an oxymoron, the "ischemia-reperfusion hypothesis" is indeed a popular theory...
  26. Pyrrhus

    Pre-inquest Report on the Death of ME of Maeve Boothby O'Neil aged 27 in Exeter, Devon UK

    :bang-head:
  27. Pyrrhus

    What Exactly is Dysautonomia?

    :thumbsup: This is indeed a popular theory right now due to interest in the cardiovascular manifestations of a coronaviral infection. However, upon further inspection, this theory falls flat. Specifically, the symptoms of PEM are nothing like the symptoms of ischemia-reperfusion injuries...
  28. Pyrrhus

    Is CFS the same illness as fibromyalgia: evaluating the ‘single syndrome’ hypothesis (Abbi and Natelson, 2012)

    It looks like we have a nice diversity of viewpoints: Here's my own personal perspective: Thirty years ago, the diagnostic criteria for fibromyalgia focused on the single symptom of pain. As a result, it became a wastebasket diagnosis for all sorts of chronic pain patients. Thirty years...
  29. Pyrrhus

    Is CFS the same illness as fibromyalgia: evaluating the ‘single syndrome’ hypothesis (Abbi and Natelson, 2012)

    From an interview with exercise researcher Dr. Dane Cook: https://phoenixrising.me/myalgic-encephalomyelitis-chronic-fatigue-syndrome/pain-pem-dane-cook-fibromyalgia-exercise/
  30. Pyrrhus

    Is CFS the same illness as fibromyalgia: evaluating the ‘single syndrome’ hypothesis (Abbi and Natelson, 2012)

    Related papers, also by Benjamin Natelson: Elevations of Ventricular Lactate Levels Occur in Both CFS and Fibromyalgia (Natelson et al. 2017) https://forums.phoenixrising.me/threads/elevations-of-ventricular-lactate-levels-occur-in-both-chronic-fatigue-syndrome-and-fibromyalgia.57035/ ME/CFS...