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    Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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  1. sparkle_zzirf

    Whooshing sound/feeling in neck or head?

    I get that whoosh/pulse/feeling sound but only on one side of my head. I have no idea what it is. Another thing that worries me.
  2. sparkle_zzirf

    Article: A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No

    I did not mean to suggest that at all. I meant that if only the ones that did the GET got the CBT and only the ones that got the adaptive pacing got the specialist treatment then basically there were 2 groups of 2 treatments. I am not sure if I got that right - but if it was that way then CBT...
  3. sparkle_zzirf

    Article: A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No

    Why has the user removed that video you link to?
  4. sparkle_zzirf

    Article: A Hitch in its Step: PACE Trial Indicates CBT/GET No Cure For CFS, 60% of Patients Show No

    Thanks Cort. Can you tell us more about the pairing of the treatments? Did the same patient group get to try out more than one treatment? For some reason I got the impression from listening to an audio I found that those that did the GET also did the CBT.
  5. sparkle_zzirf

    Comment by 'sparkle_zzirf' in 'Azithromycin & Mycoplasma'

    aquariusgirl is voicing my concerns too. I know I have had micoplasma pneumonia in the past but my current doctor will not perform viral studies on me and that was a long, long, long time ago but I feel like I have the flu (what else is new?). What sort of doctor will do viral studies? I'm in...
  6. sparkle_zzirf

    PEM/delayed fatigue - cardinal symptom?

    Sparkplug Said to Only Resting, I'm so excited to have a community of HRM users. Do we have anyone who has been doing it longer than you and I (it's me your ole pal w/ the bagpipes toggling down my st;)? Really, GREAT post!!! As I told you on FB it feels as though you have a camera in my head...